Announcement

Collapse
No announcement yet.

Amy's posts

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Amy's posts

    I would like to call attention to Amy's posts (ihurttoo) in general, and to two recent posts in particular which are so generous and compassionate that I feel they deserve special recognition. Amy is always strongly sympathetic, gently encouraging, and whole-heartedly supportive; she goes so far as to offer her phone number fairly often, and even her own medical records on at least one occasion. She provides concrete examples of coping methods, which is especially helpful for newbies.

    The two posts I have in mind are:

    http://www.ic-network.com/forum/showthread.php?t=37269
    http://www.ic-network.com/forum/showthread.php?t=37282

    Thank you for your consideration.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

  • #2
    Dear Sweet Carolyn,

    Thank you so much for your kind post. I am feeling pretty rough today, after falling down the stairs last nite, but your post brightened my day! I am glad you liked them, though I must confess, I truly dont see anything special about them at all! But, I am glad that you liked them.

    It was so thoughtful of you to nominate them, and I am truly honored and overwhelmed by your act of kindness.

    I truly think that all the posts that everyone writes deserve recognition. It blows my mind when I stop and think about how each person here is going thru their own personal battle with IC and so many are dealing with unbearable pain, yet everyone who posts steps outside of that each time they post to someone else. It is like each time they do it, they are saying, "I may be hurting, but I am not controlled by this disease. I am still going to use what is left to help other people." It is truly overwhelms me when I stop to think that we now have over 14,000 members here, who are all doing that each time they post.

    Whatever I give, I feel like I have taken so much more from this place. I will never feel like I can post enough to balance the scales. Especially when I see so many people (like you) that hardly ever post asking for help with anything, but I need you all all the time!

    Thank you again for the kind words you wrote. You are a great person and a very thoughtful one too!

    Hugs,
    Amy

    Comment


    • #3
      Amy, you are much too modest, as always But that is a sign of what a true friend you have been to everyone on this board, as well as to your friends and family off the board.

      Comment


      • #4
        Amy,

        You are a DOLL! Your posts are always SO sincere, helpful and thought out!! You really did make me feel ALOT better! I appreciate it so very much!

        XOXO,
        Kara
        Hugs and Wishes for Pain FREE days!!,
        Kara


        www.loveforearth.net ~reducing plastic waste one bag at a time~

        Facebook: Kara Kaiser
        Twitter: Love4Earth

        Me and my Guccigirl... she helps me through those painful hours!

        Comment


        • #5
          Yes, you are truly a blessing Amy!

          I hope you are okay? I fell last year twice and it made my IC so much worse!

          Hugs,
          Moonheart
          http://www.TheCraftyEwe.etsy.com

          Comment


          • #6
            Amy: I agree with the others, your posts are always sincere and from the heart. I do hope you are feeling better. Did you ever get your computer moved from the upstairs? We don't need you falling and feeling bad, heck we all feel bad enough without anything else happening to us.

            Comment


            • #7
              Amy is always there for you, and her compassing and giving has no end. She has helped me personally pick myself up by the boot straps more than once. Thank you Amy!

              Erika
              IC diagnosed officially via cysto/urodynamics 1/26/07

              Grade II Endometriosis diagnosed via lap 12/11/07

              "Fall down seven times, Stand up eight."

              "Life is a tragedy for those who feel and a comedy for those who think."

              Current Treatments:
              Interstim Since 5/25/07!
              Birth Control

              Comment


              • #8
                Amy

                Amy,

                You are that one person I can call when I am really upset about "something" and you always CALM me down and get me to more level thoughts. I admire all of the posts that you write. You are a true blessing to each and every one of us. Over the time that I've known you, I can think of hundreds of amazing posts where you offer encouragement and incredibly thoughtful advise on living with IC. The topics you have covered are numerous.

                You will always be special to me no matter what you are doing.

                Love and Hugs!

                Kara
                Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                I also have some journals of my journeys, past and some present at:
                http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                Comment


                • #9
                  Dear Amy,
                  I have read so many of your posts and your kindness and gentleness always shows through!
                  I love the picture you have posted and I feel very fortunate that you are on this board to give so much good advice and support!!!!!
                  Love, Katheryn

                  Comment


                  • #10
                    Thank you all for the kind words. Each of you gives so much and each of you bring such a unique perspective to each post to which you respond.

                    Bri- Thank you for always being there for me. Thank you for calling me the other day and for picking me up when I was so down. You always seem to intuitively know when to call and the right things to say to make me feel better. You also do that for others whenever you post. I am so honored that you are one of my dearest friends.

                    Kara29- You have gone thru so much with your own health and now you are helping your Mom with her battle with cancer. I am amazed at the strength you have, but also that in spite of everthing going on, you somehow still find the strength to come here everyday to help other people. Like Briza, you are one of my dearest friends and are always there for me whenever I need you, no matter what is going on in your life.

                    Moonheart, Thank you for your sweet message. I am still hurting today, but I think it is just going to take time. I know you have had alot going on with your health and hope that YOU are okay.

                    Kara Isabel, I felt so bad for you when I read your post yesterday. I know how much you rely on your meds in order to function. I still cant get over your Dr. doing that, when you have been doing so well! I meant every word I wrote to you. YOu are very persuasive and I really do think you will be able to get him to change his mind. But, if you need my help, I will be glad to write a letter for you with copies of my r/xs so he can see what I am on and that I have the same conditions as you do. I dont know if it would do any good or not, but if you want me to do it, I will be glad to. YOu are always there for me and everyone else. We all care about you and want to see you get the help you need and deserve.

                    Kathryn, I also want to thank you for your sweet post. You have been such a wonderful addition to the ICN. I know that you have had a rough time lately too, but I know that you have been here using your pain to help others thru theirs. It takes a strong person to do that. Alot of people just cant do that. They arent strong enough. But, not you! From the first day it happened, you have been here, and getting stronger by giving more and more ever since. YOU are an inspiration!

                    Mary, Thank you for your nice comment. And no, I havent gotten the computer moved downstairs yet. I know this is pretty shallow, (and am prepared to get the :tsk) but, it is so UGLY! I just dont know of any room that wouldnt be made ugly by it's addition! I know that when a person is a klutz like me, that saftey should come first. I really do know that! And I probobly will have to do it, b/c to be honest, this is not the first time I have fallen down those stairs. It isnt even the 2nd time. And I know that I might not get as lucky the next time! I could break my neck all for being shallow. So, I will do it. I just gotta have my husband hook it up, since I dont know how to do any of that. Thanks for the reminder! Sometimes it just takes someone saying the right thing at the right moment to jolt someone to action, and you always know what to say and when. Thank you for that!

                    Carolyn, Thank you again for the nomination and just being so thoughtful. You already know how I feel about you! You are one of the warmest, wittiest ladies around, (and sharp as a tack!) I have told you this before, but it bears repeating, that when I write something, and YOU like it, I feel very honored b/c your posts are always so informative, eloquent, and well-presented, that when you like something I write, I sit there going, "Wow!! Carolyn likes my post!" Like if a teacher likes something you write, it feels important, like that! That is how much I value your opionion!

                    Erika (humpiepumpkin), Thank you for your lovely post. Like the others, you are also always there for me personally, and for everyone else. Please know that even though I said similar things about the others, that this isnt a copy, and that I am sincere each time. And I am sincere now when I tell you that I really admire you. Wanna know a secret? There are a few people here, whose paths I dont cross on here as much as I would like. But, it isnt because I dont WANT to, it is because with limited time to post, I dont always have the luxury of replying to every post in which I would like to reply. But, there are a few people on here, that when I see they have responded to a post, I know that they will said whatever I would say, (if I were as eloquent). You are one of those posters. Even though I LOVE reading your posts, I view it as more of a luxury, not a necessity, because you always succinctly tell the poster whatever the same thing it would take me forever to say. That's why I dont feel like our paths cross very much. There are a few others that I feel that way about too, but you are definately one of them.



                    I thought of addressing you all in the same reply, but the truth is that even though you are all so similar, you also each have something that makes you special. And this is also true for all of you. I didnt want the specialness of any of you to be lost. However, if any of my responses sounded reduntant, please know it is only because I lack the vocabulary to effectively describe each of you and thank you in a unique way. But, I promise you all, I truly do think of each of you as unique and special, and value each of you more than I am capable of explaining. Every response here is so meaningful to me and truly touched me.

                    Sorry this was so long! Thank you all again from the bottom of my heart!

                    Hugs,
                    Amy

                    Comment


                    • #11
                      You are such a dear. I have been living at the top of some really steep stairs and one day a couple months ago (not the same time) I was walking down the stairs and my left leg just went numb and fell out from under me. Unfortunately I was only halfway down the stairs at that time, but I made it down the rest of the stairs rather quickly after that. LOL. I fell all the rest of the way. Fortunately I didn't really hurt anything just sore and bruised, but it was scary having everything go numb like that. Fortunately I won't have to worry about it much longer as we're moving.

                      Hugs to you and all my sisters,
                      Moonheart
                      http://www.TheCraftyEwe.etsy.com

                      Comment


                      • #12
                        Mon dieu, Amy, you scare me when you put me up on a pedestal like that! I don't know why you see me that way. I'm not sitting here passing judgment on anyone's writing skills. In my view, you and I are just peers and, I hope, friends. You have helped me learn to cope with this condition, in ways that I would never have been able to come up with on my own. I will always be indebted to you.

                        You are too modest, sweetie. And you need to learn how to take a compliment!
                        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                        Wishing you happiness and good health, and all the best out of life.

                        Peace, Carolyn
                        ___________________________________________________

                        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                        On the Beach with IC

                        Comment


                        • #13
                          Originally posted by Berkshire Road View Post
                          Mon dieu, Amy, you scare me when you put me up on a pedestal like that! I don't know why you see me that way. I'm not sitting here passing judgment on anyone's writing skills. In my view, you and I are just peers and, I hope, friends. You have helped me learn to cope with this condition, in ways that I would never have been able to come up with on my own. I will always be indebted to you.

                          You are too modest, sweetie. And you need to learn how to take a compliment!
                          I guess the bad stuff people say is just easier to believe! I definately have more practice accepting the bad stuff. (You should hear the stuff I tell myself! )

                          But thank you all so much! Thank you again for the nomination. I was truly blown away and have been a misty eyed blubbering mush ball ever since. :kisssing:

                          Comment

                          Working...
                          X