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  • rosesitty
    replied
    Mary - you may want to check and see if it's not PFD instead of IC that's causing you the pain down you leg. It's my belief that PFD, at least for right now, is the cause of my worst symptoms. From the PT trigger point work, I have horrible hip and back pain, with the hip pain radiating down my thigh to my knee, in the front and on the side. Just a thought. There's so much for us to think about, it's hard to know what's what.
    Stephanie

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  • smcclafferty
    replied
    Originally posted by marysxx View Post
    Just wondering if anyone can give me a realistic answer to how long eliron takes to work. I know its not over night but I have heard anywhere fromsix months to a year. Also does anyone ever feel so irritated that the pain in the vaginal area goes down your thigh into the bottom of you foot? I have been on elmiron since about december of 2006. Also I use elavil makes me tired, but works. I know that my diet is making it worse. Also before my period its bad. help just want to hear from someone who understands.
    Marysxx
    Yes, I have the pain that radiates down my inner thigh all the way to my foot! I had it ever since my cysto/hydro/biopsy 11 weeks ago, and it hasn't let up since.

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  • ICNDonna
    replied
    Most doctors will say about six months, but some report improvement sooner than that. I do encourage you to give the diet a try. You'll find details in the Patient Handbook at http://www.ic-network.com/handbook --- it can be tough at first, but it's well worth the effort.

    Sending encouraging hugs,
    Donna

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  • Roxie2007
    replied
    When I started Elmiron my IC specialist said it takes 4-6 months to see any result.......after all is it rebuilding the mucus lining in your bladder and that takes a while. I've been on it for 8 months now and I can tell a difference. Just give it some time.....hopefully it'll work for you too. Roxie

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  • asmashly
    replied
    I really do not know how long. I know IC never goes away, but I do have to believe Elmiron helps after 4 months. but still I flare it all the time. I hate this!

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  • marysxx
    started a topic pain

    pain

    Just wondering if anyone can give me a realistic answer to how long eliron takes to work. I know its not over night but I have heard anywhere fromsix months to a year. Also does anyone ever feel so irritated that the pain in the vaginal area goes down your thigh into the bottom of you foot? I have been on elmiron since about december of 2006. Also I use elavil makes me tired, but works. I know that my diet is making it worse. Also before my period its bad. help just want to hear from someone who understands.
    Marysxx
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