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Progress Report After Hunner's Removal Surgery

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  • #1

    Progress Report After Hunner's Removal Surgery

    I have been pretty sore after having my hunner's ulcers lasered off last Friday. In the last 24 hours I had quite a bit of improvement with the burning burning and frequency. I am going back to work tomorrow and I hope I can make it through a whole day without being miserable by the time I come home. Yesterday I started taking cytotec. I got it through my primary doctor. I am hoping that it will keep my hunner's from coming back so often.
    I am about to give up on Elmiron and I am looking to find other alternatives to fight this horrible disaese. I somehow, someway find permanent relief from before I lose my mind as well as my job (attendance problems). IC really SUCKS!
    TexasHoney

    Let's keep praying for a cure.
    IC Symptoms began in early 2001
    Divorced : Sept 2002 (Partly due to IC)
    Diagnosed with IC in April 2004
    Most recent injury - Rupurtured Left Achilles Tendon
    Wed Jan 28 2009     (Ice Storm Accident)
    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
    Other Injuries
    Broken Left Ankle - July 2004 ( fell off ladder)
    Broken Left Ankle (Again) - May 2005 (car accident)
    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

    CURRENT MEDS
    Elmiron, Pyridium
    Tags: None
  • #2
    Hi TexasHoney!

    I'm glad that you got through your surgery and feeling better. I can only imagine how hard it is to have to have the hunner's removed. I don't have them so I have no idea. You mentioned losing your job? How long have you been at your job? Have you looked into FMLA (family medical leave act) I've kinda became an expert on it because I had to use it while I was pregnant as well as now because I have used up all of my paid time off for the year and we are only 6 months into the year. Basically if you've been at your job a year and as long as they're not a really small company you should be able to apply for FMLA which allows you to have time off for your medical condition and it protects your job. If you've used up your paid time off they don't have to pay you, which sucks not to get paid but at least you still have your job. I just signed up for it and I was approved by my dr to have time off for flares and dr appts.

    Hope you have a good first day at work and make it through the day w/o any problems.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment

    • #3
      Please take it easy, follow your IC diet, and feel better!

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        I am glad you made it through oh..Sure hope yo get to feeling better soon..
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          (((Hugs)))
          Sharon

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.



          Link to the ICN Patient Handbook:
          http://www.ic-network.com/handbook/

          Link to the IC Diet:
          http://www.ic-network.com/diet/


          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            Good luck at work. Take it easy don't overdo!! You need to take care of you. I hope you will be feeling a lot better soon!

            Hang in there and keep us all posted. Sending good thoughts your way!!

            Comment

            • #7
              Hello, Everyone - It's 2:30 am here in Texas
              My bladder woke up about 2am after about 4 hours of really good sleep so I thought I would check the boards. I almost forgot I made about this thread
              To answer your question Christine about paid leave, I have been at my my company for 5 Years and took some FLMA time in Nov-Dec 2005. I thought I read somwhere That there is a waiting period before you apply for it again but I don't really remember. I thinking about looking into it again if I don't start feeling better. I want to thank everybody for thier replies and concern. I don't know what I would do without gals.

              Love Y'all
              TexasHoney
              TexasHoney

              Let's keep praying for a cure.
              IC Symptoms began in early 2001
              Divorced : Sept 2002 (Partly due to IC)
              Diagnosed with IC in April 2004
              Most recent injury - Rupurtured Left Achilles Tendon
              Wed Jan 28 2009               (Ice Storm Accident)
              2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
              Other Injuries
              Broken Left Ankle - July 2004 ( fell off ladder)
              Broken Left Ankle (Again) - May 2005 (car accident)
              Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

              CURRENT MEDS
              Elmiron, Pyridium

              Comment

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