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IC flare treatments BEFORE a flare?

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  • IC flare treatments BEFORE a flare?

    Hello all!

    I was just curious. Since there are several steps given to help reduce a flare as soon as you feel one coming on, are there any of you who eat/drink things you know you can't have and right after start on these things? I mean the Prelief, the Baking Soda in water, the Tums, even a pain med and a Pyridium?

    I am just curious as to the success rate that would have. Obviously you wouldn't do this multiple times a day and throughout each week. But if like your family is going to a Mexican restaurant for someone's birthday and you really want to be able to eat one of your no-no menu items there etc. Would you feel able to eat that or those things and come home right away and do all the 'coping with flares' techniques with success?

  • #2
    For me, it doesn't work. I tried in the beginning, to eat things along with Prelief, but I still had the flare and the interruption of quality of life that happens with it. For me, it's just not worth it and I don't think I'd even enjoy the food now, knowing from painful experience that I can be sick for several days afterwards. I wish I had a better answer for you, but for me, that's kind of just how it is.

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
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    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      That's a good point about pain. Since I don't experience pain the possibility probably sounds more appealing to me. The only thing I would be really worried about is loss of sleep for more than a few days.

      If I knew I would get frequency for like 3-5 hours and then be done with the flare I SO would take that choice.

      I am too chicken to try it yet. I have no idea as of yet how long my flare from that would last.


      • #4
        I've had diagnosed IC for 36 years and I still wouldn't try it. When I'm stuck in a Mexican restaurant, I will order either a crisp bean burrito (after asking exactly what's in it) or a plain hamburger --- most places will have hamburgers.

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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          i have been thinking about this one too. Last time i drank a week or so a go i was very careful and had no pain but then i decided to try coffee a day later which caused me pain and must have tipped it over the edge. I did not use the flare tactics immediatly after the coffee and i wonder if i did would it have stopped the pain. Im too sacred to try again.
          TMJ Dysfunction 2009
          Vulvodynia and/or PFD 2010
          IC, based on symptoms alone 2010.
          PCOS March 2012

          8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

          Currently using: IC Diet...pain meds as needed
          Medications / treatment tried and discounted:
          Fluconazole 150mg 1 per week for 6 months (yeast)
          Endep 25mg - 4months
          Lyrica 75mg - 2 months - FLARE
          Oxytrol patch - I think this caused retention.
          Countless creams, lotions and potions.
          Cystoprotek - no change in symptoms
          PT - for 1 year
          Various herbs and supplements


          • #6
            I hear you Claire. While I am very conscience about the need to try new things (so I don't end up scared to try anything not on the IC approved diet ever) it's still hard. At least for me when I flare I am triggering depression and anxiety from before I got my diagnosis and was in so much despair. I try to remember that if I flare now I have all the tools (meds) and knowledge I didn't back then to get me through it. It's still a struggle for me though.


            • #7
              That is a good question. I know in the beginning if I ate anything I wasn't sure of I would take a couple tums right after I ate out of paranoia so maybe it helped, but I guess I'll never know. I never had the nerve to try something like red wine or regular coffee just to experiment because I know now what it does to me.