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IC flare treatments BEFORE a flare?

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  • IC flare treatments BEFORE a flare?

    Hello all!

    I was just curious. Since there are several steps given to help reduce a flare as soon as you feel one coming on, are there any of you who eat/drink things you know you can't have and right after start on these things? I mean the Prelief, the Baking Soda in water, the Tums, even a pain med and a Pyridium?

    I am just curious as to the success rate that would have. Obviously you wouldn't do this multiple times a day and throughout each week. But if like your family is going to a Mexican restaurant for someone's birthday and you really want to be able to eat one of your no-no menu items there etc. Would you feel able to eat that or those things and come home right away and do all the 'coping with flares' techniques with success?

  • #2
    For me, it doesn't work. I tried in the beginning, to eat things along with Prelief, but I still had the flare and the interruption of quality of life that happens with it. For me, it's just not worth it and I don't think I'd even enjoy the food now, knowing from painful experience that I can be sick for several days afterwards. I wish I had a better answer for you, but for me, that's kind of just how it is.
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


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    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

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    • #3
      That's a good point about pain. Since I don't experience pain the possibility probably sounds more appealing to me. The only thing I would be really worried about is loss of sleep for more than a few days.

      If I knew I would get frequency for like 3-5 hours and then be done with the flare I SO would take that choice.

      I am too chicken to try it yet. I have no idea as of yet how long my flare from that would last.

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      • #4
        I've had diagnosed IC for 36 years and I still wouldn't try it. When I'm stuck in a Mexican restaurant, I will order either a crisp bean burrito (after asking exactly what's in it) or a plain hamburger --- most places will have hamburgers.

        Donna
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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

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        • #5
          i have been thinking about this one too. Last time i drank a week or so a go i was very careful and had no pain but then i decided to try coffee a day later which caused me pain and must have tipped it over the edge. I did not use the flare tactics immediatly after the coffee and i wonder if i did would it have stopped the pain. Im too sacred to try again.
          TMJ Dysfunction 2009
          Vulvodynia and/or PFD 2010
          IC, based on symptoms alone 2010.
          PCOS March 2012

          8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

          Currently using: IC Diet...pain meds as needed
          Medications / treatment tried and discounted:
          Fluconazole 150mg 1 per week for 6 months (yeast)
          Endep 25mg - 4months
          Lyrica 75mg - 2 months - FLARE
          Oxytrol patch - I think this caused retention.
          Countless creams, lotions and potions.
          Cystoprotek - no change in symptoms
          PT - for 1 year
          Various herbs and supplements

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          • #6
            I hear you Claire. While I am very conscience about the need to try new things (so I don't end up scared to try anything not on the IC approved diet ever) it's still hard. At least for me when I flare I am triggering depression and anxiety from before I got my diagnosis and was in so much despair. I try to remember that if I flare now I have all the tools (meds) and knowledge I didn't back then to get me through it. It's still a struggle for me though.

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            • #7
              That is a good question. I know in the beginning if I ate anything I wasn't sure of I would take a couple tums right after I ate out of paranoia so maybe it helped, but I guess I'll never know. I never had the nerve to try something like red wine or regular coffee just to experiment because I know now what it does to me.

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