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Hey all,
I haven't posted in a while because my IC was doing pretty well on-and-off over the years (yay!)
I was recently diagnosed (tentatively) with MCAS, Mast Cell Activation Syndrome, and for it, I've been following the standard protocol of taking a combo of elevated doses of H1 and H2 antihistamines (H1 = cetirizine, Blexten, Rupall, Claritin etc, H2 = Zantac, Pepcid etc.) I currently have been taking Blexten (bilastine, a new H1) and Zantac. I also have been taking buffered Vitamin C (the special kind from SISU that has calcium in it) and Culturelle probiotic (l-rhamnosus). I also take my usual IC meds (Cysta-Q twice a day, vaginal diazepam cream 2 nights a week). All of this was going great, except now I'm in a gigantic IC flare and I have no clue why. I can't think of any major trigger foods I've eaten ( I follow a modified version of the IC diet and have for years) and I've been on the Vitamin C for over 2 months now. I feel like if it was going to bother me, I'd be bothered by now. I made sure to get one of the kinds recommended for IC-ers as well. My probiotic is also a low-histamine kind called Culturelle.
I do know that Blexten, my H1 antihistamine, can cause urinary retention and I have had troubles with that in the past (mostly kidney/flank pain, nausea, hesitancy and frequency) but those went away. Now I'm having a good ole' fashioned IC flare after being on the typical dose of Blexten for over a week and I'm terrified that it's causing my flare. I've gone back on Glucosamine/MSM 2x a day, the kind from SISU, a dose that's helped me a lot in the past, but it's been 3 days with basically no relief.
Has anyone else found an H1 antihistamine to bother your bladder? The pills are white, so I know it's not a dye (red dye tends to bother me), but of course, it could be an additive. Also, how long does Glucosamine at 1500mg a day take to work? I know 3 days isn't that long, but I'm going bananas over here. Any (kind) suggestions would be most helpful
I haven't posted in a while because my IC was doing pretty well on-and-off over the years (yay!)
I was recently diagnosed (tentatively) with MCAS, Mast Cell Activation Syndrome, and for it, I've been following the standard protocol of taking a combo of elevated doses of H1 and H2 antihistamines (H1 = cetirizine, Blexten, Rupall, Claritin etc, H2 = Zantac, Pepcid etc.) I currently have been taking Blexten (bilastine, a new H1) and Zantac. I also have been taking buffered Vitamin C (the special kind from SISU that has calcium in it) and Culturelle probiotic (l-rhamnosus). I also take my usual IC meds (Cysta-Q twice a day, vaginal diazepam cream 2 nights a week). All of this was going great, except now I'm in a gigantic IC flare and I have no clue why. I can't think of any major trigger foods I've eaten ( I follow a modified version of the IC diet and have for years) and I've been on the Vitamin C for over 2 months now. I feel like if it was going to bother me, I'd be bothered by now. I made sure to get one of the kinds recommended for IC-ers as well. My probiotic is also a low-histamine kind called Culturelle.
I do know that Blexten, my H1 antihistamine, can cause urinary retention and I have had troubles with that in the past (mostly kidney/flank pain, nausea, hesitancy and frequency) but those went away. Now I'm having a good ole' fashioned IC flare after being on the typical dose of Blexten for over a week and I'm terrified that it's causing my flare. I've gone back on Glucosamine/MSM 2x a day, the kind from SISU, a dose that's helped me a lot in the past, but it's been 3 days with basically no relief.
Has anyone else found an H1 antihistamine to bother your bladder? The pills are white, so I know it's not a dye (red dye tends to bother me), but of course, it could be an additive. Also, how long does Glucosamine at 1500mg a day take to work? I know 3 days isn't that long, but I'm going bananas over here. Any (kind) suggestions would be most helpful
There are so many masks and so many people looking at you like they're reading to scream at you if you do the wrong thing! It's been hard. But people are starting to be a little kinder to each other in my part of the world, and I still have the same wonderful partner I got about a year after my IC diagnosis. And my cat, of course. She helps with everything <3 How are you, Donna? Your kind, gentle words have always been a balm for us.
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