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Flair mistaken for UTI after long remission

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  • Flair mistaken for UTI after long remission

    I was lucky to have a few months without pain *if I remember correctly* then on Sunday after one too many acidic beverages, I thought I had a UTI. I tested positive at home, then had to wait until today to find out it was not a UTI, and my Interstitial Cystitis came back. I think the thing I learned today was not to do at home tests because false positives can happen, but I am relieved I don't have a UTI. I am back on Prelief and doing OTC meds, hoping this chills out. I did want to ask if anyone had tips for telling if its a UTI or what makes people say it is, basically? This happens at least once a year for me *a flair up, feeling like a UTI, then it isn't*. I am also trying to do bladder retraining/holding it 2 hours but I want to give up right now on doing that. Thank you for letting me rant.

  • #2
    My IC was diagnosed 46 years ago and I still can't tell for certain the difference between a flare and infection. and it's been years since I had an infection. If a home test says infection, it's my clue to have a culture. The home tests aren't 100%, but can be helpful. If my usual home remedies (Tums instead of soda, Bladder Rest, extra water) don't help, that also warrants a culture.

    Bladder training is usually done in small steps. I think two hours can be a good goal, but not all at once. I suggest you talk with your medical professional for advice on a bladder training program. Even if you need to increase the in between time in five minute increments, it may take a while, but it's more likely to be a success.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I was diagnosed with IC in 2013 and went through many different types of treatments: diet, bladder instillations, medications, physical therapy, etc. Within a few years I finally got things pretty well under control. I was getting up about 3 to 4 times a night and going to the bathroom about every 2to3 hours throughout the day with slight discomfort just before going to the bathroom.

      In 2020 I woke up feeling completely normal, having not awakened through the night to go to the bathroom. I was finally going about 3 to 4 times during the day and could hold it longer if necessary. My first thought was that I had started taking the supplement turmeric about a week prior. I have no idea if this had anything to do with it but have continued on it since. I continued on in remission until September 2nd. The strange thing that happened was I had been to my yearly checkup with my urologist on September 1st, telling him I was still in great shape. When I woke up on the 2nd with at first thinking I had a UTI, I knew immediately it was the return of my IC. I did not go back to the urologist because I knew there was nothing he could do to cure my IC immediately. I started on AZO (not the one with cranberry) and started strictly watching the foods I was eating. I think the big, big mistake I made was while in remission was eating and drinking everything I had restricted during my initial attack (especially ice tea and chocolate). My “go to” treatment for bladder reaction to foods and frequency is baking soda in water and marshmallow root tea. I have tried not eating any of the known irritating IC foods but if I do eat something that causes a burning when urinating after eating, I put 1/4 teaspoon baking soda in a cup of water and drink it all at once. Baking soda neutralizes the acid and calms the bladder. During the first month of my flair, I drank marshmallow root tea which also helped calm things down and supposedly this helps in the healing of your bladder. As of this date, I decided to have my cup of baking soda water after every meal, regardless of what I had eaten. Baking soda also brings up your Ph level in your blood. This is something I feel I should have kept up even when in remission. I wait about a half hour after I eat to drink this. It works best when not mixing with food. I feel that I have the IC in good control at present, but my problem, which also happened when I was first diagnosed, is that this triggered pelvic floor dysfunction and pudendal neuropathy. I went to physical therapy for this problem originally which helped tremendously. So at this time, I have started with the exercises I was taught at that time and doing them now. This is another thing I feel I should have continued when I was in remission. The neuropathy was worse this time than last, but my internist put me on Gabapentin which has completely helped the problem, as long as I take the meds. He feels I should be on this for a while.

      So at the moment, I feel I am really on the mend, I don’t hesitate to go places and back to my swimming exercises. But……I feel that I will never stop the baking soda, the exercises and staying on an IC conscious diet should I hopefully regain remission again. I will just have a bite of chocolate or a drink of tea as a treat periodically.
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      • #4
        Have you tried Prelief? It's something that is taken with the first bite of food or the first swallow of liquid --- and helps neutralize acids.

        Hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

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