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Does anyone get radiating pain in their abdomen from IC PFD flair?

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  • Does anyone get radiating pain in their abdomen from IC PFD flair?

    Hi all!
    I am in a flair because 1. I am under a lot of stress and 2. i was feeling really good and decided to have a small glass of wine . Anyway, I am in so much pain! The pain starts over the bladdera areas and raidiates into my lower back and up my stomach muscles in the front. It makes it hard to stand straight...has anyone else felt this?

    Thanks
    Jo
    :woohoo: Yogajo

  • #2
    Thats exactly what mine is like. Often when I have a flare it mimics a kidney infection.

    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

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    • #3
      Yes thats exactly what mine is that. i did the same last night....had a small glass of wine and boy I am paying for it now!!!
      I never learn though :-(
      Started with symptoms 2004 after a severe infection.
      Was diagnosed with IC Feb 2006 after cystoscopy.
      Diagnosed with vulvodyina and PN in july 2006.
      Dignosed with ME and IBS Oct 2006.
      Currently taking Amytriptaline 50mg, regular pain killers and birth control!
      Also doing IC diet and regular use of heat packs.
      Still struggling with IC and controling my symptoms so looking for some help

      also recently had abnormal pap, CIN III and just had LEEP done 2007

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      • #4
        thanks you guys! Sometime when I have a good spell for a time and then have a whammer of a flair I get freaked out by the pain. I keep asking my sister...was it this way last time? I really hate this disease! I have to think through everything nothing is spontanious....arrggggg!!!
        Jo
        :woohoo: Yogajo

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        • #5
          My pain is normally in my lower pelvic area (like cramps). When it's very bad, I explain it like my bladder is full of hot rocks or I am being poked by a hot metal rod. That is the pain that wakes me up at night.

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          • #6
            pain medicine?

            Glad you asked this question because my normal flare I don't get the radiating feeling around my kidneys and was wondering why I feel like this today.

            I was in remission for a year and then since this decemember every month after my period I go into flare.

            This month it is off the charts with regards to pain, to the point I just want to be hooked up to morphin or something.

            I called by uro/gyn and am hoping to have her give me the rescue solution because I can't stand it.

            What other pain medicines has your dr subscribed to help the pain.
            I am taking pyridium but it is not helping.
            Tried my baking soda, natrum phos, leafy greens etc
            and nothing is working.

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            • #7
              My pain starts in the bladder and ends up radiating around my lower back and down my legs (into my "lap") if I am not able to catch it right away. It's pretty normal to have this referred pain, unfortunately. Hope you feel better soon
              ****
              Jen

              *Diagnosed with severe IC in 2004
              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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              • #8
                Anybody get rectal or vaginal pain too??

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