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man suffering with IC please read ladies!

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  • #1

    man suffering with IC please read ladies!

    I have IC and about to die with the pain.. I almost had to crawl into the house today. I have been in the bed about 2 days a week for the last 4 months or so.

    Nobody understands how I am suffering!!! They all look at me like IM crazy, Im wondering if Im not heading that waY!!:woohoo:

    Ladies, I will never take lightly a UTI again from my wife!! I will alway respect woman problems from now on.

    please pray for me I am going to UT hospital on wednesday for my 1st bladder treatment, how long before I WILL notice relief?
    Tags: None
  • #2
    Glad you found us,Have you had a dio yet! What treatment are they going to give you ? Also have you gone into the patient handbook for the Ic diet ? Tried a heating pad on your lower belly for pain relief ?Avoid acid foods etc. I will pray for you & hope you get some relief soon.There are some males here .We all know how painfull this is but you will have good days as well.It all illumation to see what work best for you! I wish you the best ! let me know if I can be of any help .There is others here with more info than myself, But I can be a strong shoulder & friend .You are no longer alone here remember that.There is amazing people here to reach out for support!
    Hugs Sandra
    "Never Give Up."

    To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

    My Photobucket Link:
    http://s237.photobucket.com/albums/f...ramack_photos/

    Comment

    • #3
      Hi,

      I am sorry also for what you are going through and am hoping your flare passes soon.
      Like sandra said i do not know what treatments you have done but listen to what she said about the diet etc..
      Everything you need to know about IC is right here on the boards and the handbook etc..
      If the heating pad doesn't work try something cold or maybe a combo of both.
      You can also try some baking soda in your water, always seems to calm down my bladder a bit, doesn't taste great but who the heck cares when your in pain.
      It's nice for you to say you will never dismiss your wife's uti's again, but remember IC isn't just a woman's disease. I know lots of men that have it on here and at the support group meetings i go to, they seem so embarrassed, well nothing to be ashamed about, your human like the rest of us and are sick right now. I was reading this article the other day on the ICA about this young boy who was diagnosed with ic at the age of 4 i mean my god 4...that is just cruel.
      I hope you find something that will bring you releif,
      Tracey
      Diagnosed w/IC 7/18/05
      Dx'd w/Endo 5/5/06
      CFS
      IBS

      Current Treatments:
      Elmiron-100mg 4x's a day
      Atarax-10mg's 2x's a day
      IC Diet
      Oxycontin 40mg-Only when i can't take it anymore!



      Laparoscopy done, Endo lasered, Let's pray it stays away!



      "If you haven't gotten all the things you want, be grateful for the things you don't have that you don't want."

      Comment

      • #4

        I am so sorry you are in so much pain.
        This is a great place for tips and information.
        Sending you prayers and well wishes.
        Miss Bessie

        Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

        Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

        Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

        Comment

        • #5
          To the ICN family.I am sorry to hear that you are in so much pain. I hope your bladder calms down soon.
          TexasHoney

          Let's keep praying for a cure.
          IC Symptoms began in early 2001
          Divorced : Sept 2002 (Partly due to IC)
          Diagnosed with IC in April 2004
          Most recent injury - Rupurtured Left Achilles Tendon
          Wed Jan 28 2009           (Ice Storm Accident)
          2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
          Other Injuries
          Broken Left Ankle - July 2004 ( fell off ladder)
          Broken Left Ankle (Again) - May 2005 (car accident)
          Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

          CURRENT MEDS
          Elmiron, Pyridium

          Comment

          • #6
            Sorry to hear that you are in pain but at least you have started treament. This is the first step and things will get better!
            Erin

            Comment

            • #7
              Will you be having a hydrodistention? If so, recovery time can vary. I feel better within a day or two after a hydro, but it does take a couple of weeks to fully recover. I hope this procedure works for you.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment

              • #8
                I too would like to say Welcome to the ICN!! You have come to the right place for information, support etc. I too want to stress how important the diet can be. For me in the beginning, that was one of my biggest tools to help manage my symptoms while waiting for my meds to do their thing It's something you can do for yourself - no doc required and you gotta eat anyway!

                Hope to see you around the boards!!! Once again welcome and nice to meet you!
                Hugs,
                Tracey
                How do you eat an elephant? One bite at a time...

                Harry arrived 2/23/09!



                *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                IC Diet Cheat Sheet:
                http://www.ic-network.com/diet/2009icdietlist.pdf


                Dx's:
                IC dx'd Nov 2004
                Lymphocytic Colitis dx'd July 2005
                Possible IBS
                Current IC Meds
                Vistaril 25mg in the evening
                Previous IC Meds taken:
                Cystoprotek - 2 caps 2x's a day
                Elmiron, 100mg 3x's a day
                Ditropan, 5 mg 3x's a day
                Others:
                Wellbutrin 150mg 2x's a day for Anxiety/IBS
                Pepcid 40mg a day for GERD
                Zytrec for Nasal Allergies
                Align Probiotic daily for IBS

                Comment

                • #9
                  Welcome to the boards. I am so sorry you are hurting. I would say get some Azo Standard and try it. The generic is pyridium. That may help a whole lot or not at all, but it is definitely worth a try! I hope you feel better soon.
                  http://www.TheCraftyEwe.etsy.com

                  Comment

                  • #10

                    I am so sorry you are suffering.. I will say that the first couple of months are the worse, in time things will get better.. You just have to find what works for you..I have found out Elavil, and Cymbalta and the IC diet have helped me the most..I would suggest you learn all you can about IC knowing all the facts will help you along your journey..And remember we will all do what we can to help you to
                    Hugs
                    Ronda

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                    Link to Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Diet Reference Sheet:
                    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment

                    • #11
                      I am sorry you are in so much pain and understand the pain completely.
                      Try the diet first to see if you can get some relief.

                      Ginny

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                      • #12
                        thanks

                        thanks everyone for your encouragement..

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