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  • Uh oh... here we go...

    It's back- and with a vengence! I had been coping with only mild IC pain and symptoms the last few months. I figured that my pain management (MScontin and vicodin for breakthrough) was doing it's job or I was in a remission of sorts.

    A flare started this weekend and it has brought me to my knees. I'm throwing all my meds and coping skills towards it and the pain level is staying way high. Tonight I'm at a 9- with pain meds!

    Tomorrow, I will call my uro and try to get an appt. If my pain level remains high, I'll call my pain management doc, too. I'm also glued to my heating pad (heat seems to help at times) and will take another warm bath.

    Thanks for letting me vent! You all understand...

    Hugs, Carla

  • #2
    I am so sorry you are in so much pain. Will say a prayer for you
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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    • #3
      I hope you feel better today.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      Sub-types https://www.ic-network.com/five-pote...markably-well/

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      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Keeping my fingers crossed that you will feel better soon.

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        • #5
          Carla, I'm so sorry... it stinks when you've been feeling so good for a long time and then the IC comes raging back. That is the most frustrating of all flares!!

          I hope you are feeling better today -- and I hope you get quick appts. with your docs...
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            Thank you!! You all are the reason I keep coming back here! Still flaring away... and my uro is not in the office today- it figures.

            I have a comic strip I do for my quilting and fiber art work. It is how I express myself at times. I drew this up to express what I am feeling today, though I had to downsize it so much it may not be readible. The chicken character is saying : "IC Flares are extremely hard to live with..." The red thing is an IC Pain Meter. Hugs, Carla
            Attached Files
            Last edited by carla_2004; 02-14-2007, 06:27 AM.

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            • #7
              Oh Carla, I know exactly that whole thing. Where you think it must be just a miracle you've had good pain control, and the meds are finally working the way they should.... and then crash! It truly does bring you to your knees. It's amazing. I'm so sorry you are hurting. I hope it is over soon.

              Hugs!
              Moonheart
              http://www.TheCraftyEwe.etsy.com

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