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OH NO, NOT AGAIN ( My period has just started and I am flaring big time)

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  • OH NO, NOT AGAIN ( My period has just started and I am flaring big time)

    After about a week of decent relief from this awful disease I am am completly miserable once again. Above normal period pain and my bladder feels like it is being hit with a hammer. Real bad throbbing pain this time. When I pee my ureathra feels like it being stung by fire ants. I have been peeing about every 20 minutes since about 7pm and it looks it is going to be a very restless night. I am soooooo tired of having to live like this. My pain meds are not working at all. This is utterly ridiculous. I can't ever seem to get any long lasting relief. I feel so hopless. I am about to lose my freaking mind. I HATE IC! I HATE IT! I HATE IT! I HATE IT!
    Last edited by TexasHoney; 02-13-2007, 06:26 PM.

    Let's keep praying for a cure.
    IC Symptoms began in early 2001
    Divorced : Sept 2002 (Partly due to IC)
    Diagnosed with IC in April 2004
    Most recent injury - Rupurtured Left Achilles Tendon
    Wed Jan 28 2009
    (Ice Storm Accident)
    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
    Other Injuries
    Broken Left Ankle - July 2004 ( fell off ladder)
    Broken Left Ankle (Again) - May 2005 (car accident)
    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

    Elmiron, Pyridium

  • #2
    I am sorry you are in so much pain.......I agree with you......I also hate this disease

    I hope you pain eases soon.
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life


    • #3
      Hi texas,

      I just want to wish you some sort of releif, i know exactly what your going through. I do well also than period time UGHHHHHH it's friggin horrible.
      Have you ever tried anaprox for the cramps, it helps me most of the time and for quite a bit of time. I started on 550 mg's but now i take 275 and if i need to i take 2.

      Sending good thoughts and feeling better soon,
      Diagnosed w/IC 7/18/05
      Dx'd w/Endo 5/5/06

      Current Treatments:
      Elmiron-100mg 4x's a day
      Atarax-10mg's 2x's a day
      IC Diet
      Oxycontin 40mg-Only when i can't take it anymore!

      Laparoscopy done, Endo lasered, Let's pray it stays away!

      "If you haven't gotten all the things you want, be grateful for the things you don't have that you don't want."


      • #4
        I'm sorry that you're in such horrible pain Have you thought about going on continous birth control? I have personally been on the pill for years and when I was diagnoised w/ IC I realized that I was having horrible flares during my periods. To help w/ this my gyn told me to start taking my normal pills continously and to skip my week of fake pills. If you're not already on the pill then maybe your doctor can put you on one of the ones that is marketed to be taken all the time. Just a thought, I'm still having pain, but that's because nobody has given me any pain meds yet! but at least I don't have to worry about it getting worse during my period anymore. Hope you feel better soon.

        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus