I am going crazy

[Big Red]

I am in a flare. Have been over a month or maybe even longer. My doc. did a cysto. in the office and has a dilation planned. He sent a uA to the lab which he doesn't usually do and after almost two weeks I haven't heard a thing from him. He is senting me to PT for what I don't know. I am feeling awfull. All I can think is that something more than just IC IF thats not enough is going on. I think I think to much. As he gave the urine that he removed by cathetar to the nurse he used the words in situ. Well I studied that word and it refers to cancers. I which I know what is going on. I think that all this not knowing is making me feel worse. We went to Arizona last week-end to see sons family. I hurt the whole week-end. We had to stop every hour or so to go to the bathroom. I think my daughter in laws grandparents must I thought I was crazy. OK enough griping my life could be alot worse. Thanks for being there. Thats how I feel.

[KathrynPInk]

Hi, Big Red

I know you must be at the end of the rope. I too, have been in an awful terrible flare for over a month. I just got back from my Uro and here we go, trying some extra meds, as well as new meds. I am trying now to decide; is it interstim or another Hydrodistention if things do not go well in a few weeks. How did the hydro go for you? Has it made things worse or a bit better? I am so sorry you are in such misery; all I can tell you is that I am in the middle of this mess myself , having been very fortunate to have a long ride with a great remission. Have you ever had a remission? I try and remember what it is like not to feel my bladder all the time! Those were glory days compared to now.
I am thinking of you and realize what this awful, crappy disease does to us.
Please take care of yourself. I hope you have someone to lean on. At this point, I need this group badly.
I will be thinking of you and hoping we both can beat this monster back!

Love,
Katheryn

[leelee88]

((((((((((((hugs))))))))))))) I am so sorry you are feeling so bad..I hope your results come back ok...I will be praying for you

[Big Red]

I haven't had the hydro yet. I have had some in the past. It seems to work for a period and tehn I shrink back up. I am anxious to try it againl. I have an inter-stim sometimes I think it works and sometimes I don't. I have had some good periods but it seems like not to many. This last visit my doc but me on whats called an Oxydel patch. I don't see were it is doing anything. I got my Physical Therapy appt. for the 6th of March. Hopefully this will help with the pain from the urethra to the vagina. Dont really know what to expect there. I have a great husband who really cares even though he has his own physical problem that he is focused on at this time. I hope you get feeling better soon. Sending you a big hug. Thank-you for the nice messages of concern to both of you. Have a great day.

Thank-you for your prayers. I know that all of this is in God's hands and I will get the news when I can handle it.

[dodgewoman]

I feel for you, I too have been in a pretty nasty flare for almost 2 months. It sucks BIG time. I understand wanting to try anything to feel better again. I hope someting helps you soon, big hugs to you.

[KathrynPInk]

Hi

I am so sorry to hear, you too, are in a nasty flare! This is torture, but I am telling myself today, that these things can go just as fast as they hit us. I hope you feel better soon, and if you find anything that helps turn you around, let me know. I will think of you. take care,
Katheryn

[Moonheart]

in situ means "in the original position" so it may not be related to cancer at all in your case.

Will be praying for you...

[Big Red]

I got the URine results and all the cells are neg. Now if we can just do the Hydro. maybe things will be better.

[KathrynPInk]

Hey Big Red

Negative!!! great news for you in many ways.
I hope you get the Hydro scheduled soon and began to heal.
Best,
Katheryn

[Bessie]

That is great news about your test results. I hope you get the other one scheduled soon.