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  • Roxie2007
    replied
    Laura I hope the MSM works for you the way it has for me! I just came inside from working in my cactus garden and my humming bird garden.......bending and kneeling.......with NO urethra pain! YEAH!!!!!! Still no flare up either! Roxie

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  • Emma's Mommy
    replied
    crystal light gives me HUGE flare ups....so that may be the problem!

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  • Bessie
    replied
    O.K. I finally ordered the MSM gel. I hope it helps me too!!

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  • Roxie2007
    replied
    Good Morning!

    So far the MSM gel has worked great for me. No more urethra pain and haven't had a flare up since I started using it!!!!! (11 days ago now!)
    My husband bought the stuff for me and I was in such pain.....I was afraid to try it because I was worried it would burn or make things worse. So it sat in my bathroom for several days. Finally I was hurting so bad I thought "It can't hurt worse than this!" so I put a little bit on my finger and rubbed it around the urethra area. By the next morning the pain was subsiding and the next day it was GONE!!!!! I can even bend over now, before if I bent over my urethra would kill me!
    The website for the MSM gel is http://www.jacoblab.com/FAQs.htm
    I've read that it also works great on Fibormyalgia (sp?) pain and several others. It works like an anti inflammatory and heals.
    Let me know if it works for you........I'll keep my fingers crossed! Take care.....Roxie

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  • runningshoe
    replied
    thanks guys!
    Roxie tell me about the msm gel?? Thanks,
    Lina

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  • Roxie2007
    replied
    HI! If I eat salty things is a sure fire way for me to bring on a flare or things with critic acid.....like most bottled drinks. I'd definantly notify the dr. with this problem. Roxie

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  • topcop229
    replied
    Definitely should check in with your doc again and let him or her know your symptoms and maybe switch to something like the gatorade if your doc approves.
    Sorry you aren't feeling well. I hope you can get some rest and relief very soon!

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  • lauraheather
    replied
    I also have postural orthostatic tachycardia with IC. My doctor has me drinking 64 oz of Gatorade a day b/c the electrolytes in the Gatorade help. I haven't had excess trouble with the Gatorade. It might be worth looking into.

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  • runningshoe
    started a topic need your imput and help

    need your imput and help

    HI,
    I posted last weekend that I was in the first flare in years and worst flare ever. I can't get through the day without pain meds. My situation is complicated by the fact that I started new meds and a high salt diet for a condition called postural orthostatic tachycardia. The meds might have made me pee out excess potassium, could that have started such a flare? I was drinking salty water flavored with some crystal light to get enough salt, would that have done it? I have read now that artificial sweetners are a trigger but I had been so well for so long it didn't occur to me that would be a problem. I meet with my drs next week and I want to unravel this mystery and be out of pain. Any insight or ideas? When I met with my uro last week he thought it was stress but I have never had burning like this! (not uti though - was checked). Thanks!
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