Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Hummm... Sometimes it takes days to get over a flare and sometimes longer.. it just depends.. I have found that I can be doing the same thing with meds and diet and go days without a flare then all of a sudden I have one, even though I didnt change anything.. So its hard to say, even if I know what triggeres a flare and stop eating what triggered it, that does not mean I will never get one again.. I do know that my hormones play a big part in it and stress is another trigger point.. IC is strange, It effects us in so many differant ways and effects everyone differant....
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
runningshoes I love the name.. for me on triggers its everything I eat and drink.. ggrrrr... but yes when you figure out what is what you will sart feeling better, how long I don't know.
'The will of God will never take you where the Grace of God will not protect you.'
I love runningshoe as well! I think it depends on how bad of a flare that you are having and what caused it. Drink plenty of water, especially if the flare is diet related, as this will wash out the bad stuff quicker.
~Claudia
"A heart is not judged by how much you love; but by how much you are loved by others."
~ The Wizard of Oz
"If I ever go looking for my heart's desire again, I won't look any further than my own
back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy
Thanks guys! My running shoes have always represented freedom and power. I hope to wear them again! I still have not determined what triggered the flare: high salt diet (drinking salty water!!), nadolol (beta blocker) or florinef....I stopped drinking the salty water but have not been able to go off meds yet - need to meet with drs (tomorrow). I was flaring big time for 2 weeks before I even realized it was my bladder (12 years in remission makes you forget!). I stopped the salty water 10 days ago. I have been taking pain meds but need less to get by and one day I didn't need anything until it hit around 8 pm. It will take a while to unravel the mystery but thanks for your ideas and support.
Comment