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Well, it wasn't just my feelings that got hurt today...after the stress I put on myself over someone else's problem (I think we all know what I am referring to), I am having a flare...my first since the interstim. It's very specific urethral burning. My hubby had a bit of a time getting the cath in to do an instillation this evening. Anyway, I do feel a little better, some of the burning is gone now that I've had the instill...not a fun way to spend the evening! Hopefully it will be gone by morning.
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~Claudia
"A heart is not judged by how much you love; but by how much you are loved by others."
~ The Wizard of Oz
"If I ever go looking for my heart's desire again, I won't look any further than my own
back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy
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Hopefully tomorrow will be a better day
Hang in there.......you are doing so well, don't let anyone steal your joy.
Take care
Miss Bessie
Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.
Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.
Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life -
You are too right! Going to try and catch some zzzzzz now...and tomorrow will be a better day!
~Claudia
"A heart is not judged by how much you love; but by how much you are loved by others."
~ The Wizard of Oz
"If I ever go looking for my heart's desire again, I won't look any further than my own
back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy
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Claudia,
I agree - don't let those people get to you, don't let them have that kind of control over you - you are doing wonderfully from what I have read with the trial and that is what matters.
So glad your hubby takes such good care of you!!
Hope you got some rest and that you are feeling better this morning!!
AprilComment
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Stress is sure a flare waiting to happen.Hope you feel better quicklly.Comment
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I hope you are feeling much better today
****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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Flare
That sucks! Hope you are feeling better now.8/2007 - My constant bladder pain is now gone due to a surgery where the ilioinguinal and iliohypogastic nerves were cut. I still have IC symptoms but they are improving. It's still early to say, but I believe this solution will work permanently for me.
Symptoms since 2005 - 24/7 abdominal pain, cold sweats, low back pain, vulv, etc.
Surgeries: Spinal Fusion L4-L5-S1 10/97, Anterior spinal fusion L5-S1 9/05, Lap for Cysts, Endo 9/06, Hysterectomy kept cervix 12/06
Meds: Morphine, Neurontin, Valium, Hydroxyzine, Vivelle Estrogen, Thyroid,
Exercise & PT: All at least 4 times a week
Whirlpool baths, Moist heat, Treadmill, Stretching, Trigger point, Yoga Positions; Ab & Pelvic MassageComment
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I am feeling better today..other than my incisions are sore, sore, sore!! Thank you everyone for your support!!
~Claudia
"A heart is not judged by how much you love; but by how much you are loved by others."
~ The Wizard of Oz
"If I ever go looking for my heart's desire again, I won't look any further than my own
back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy
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