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  • #1

    Big Time Pain

    I am hurting sooooooo bad, I can't sleep, and to top it off the neighborhood dogs are howling with the coyotes!!!! Maybe I should go outside and howl with them. I had a doctor's appointment today and had to do some other running around. It seems like every time I drive the pain escalates. Hopefully tomorrow will be a better day
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life
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  • #2
    Hope you start feeling better very soon!

    D
    (\__/)
    (o.O )
    (> < ) This is Bunny. He's on his way to world domination.

    Comment

    • #3
      I hope you feel much better today. I understand about running around and driving - they sometimes put me into a flare as well when I do too much in one day.
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        Im sorry you are hurting...

        But I could just see you running outside and standing there howling...lol Make sure you take a video camera with you...

        I hope you get to feeling better really soon
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          So sorry that you're feeling so bad Octoberfarm. I often find that if I do too much then I pay for it by throwing myself into a flare. I hope you get some rest and feel better soon.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment

          • #6
            Thanks everyone

            I finally got to sleep around 3:30 this morning and am feel better today. I am sitting here on my heating pad and it seems to help out.

            Leelee: That would have been funny if I would have went out there and howled....I probably would of had the cops called on me or made it on Funniest Home Videos What part of Louisiana do you live in? We go to Baton Rouge a few times a year for business and I have to tell you.....that Cheescake Factory across from the mall is wonderful!!
            Miss Bessie

            Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

            Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

            Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

            Comment

            • #7
              I'm really sorry you aren't feeling well. I hope you were able to get some rest last night and awakened better, or at least in less pain than yesterday.

              ~Claudia

              "A heart is not judged by how much you love; but by how much you are loved by others."
              ~ The Wizard of Oz

              "If I ever go looking for my heart's desire again, I won't look any further than my own
              back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy

              Comment

              • #8
                I'm really sorry. I know you generally dealing with a lot of pain, so when you post that it's hurting worse than usual, it must really be deadly. I feel crappy myself today, so we can share our pain over the ether...
                Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                Wishing you happiness and good health, and all the best out of life.

                Peace, Carolyn
                ___________________________________________________

                Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                On the Beach with IC

                Comment

                • #9
                  Octoberfarm, I am happy to know you are feeling better and hope it continues to do so. As fas as the dogs barking, I use a fan to drown out the noise. I can't sleep without the fan.

                  Sending hugs, Trishann

                  Comment

                  • #10
                    glad you are feeling better. I am sorry I missed your post..
                    I have recently hurting more too when I drive. I was just tellin hubby that yesterday.
                    'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #11
                      Trishann,
                      I had both a fan and the T.V. on
                      The coyotes really had the dogs going last night.....hopefully tonight will be more quiet
                      Miss Bessie

                      Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                      Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                      Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                      Comment

                      • #12
                        Not that I can sleep well in them, but have you tried earplugs? My sleep is so light that a cricket can wake me up sometimes. Believe me, there have been nights that I have been outside in my pjs searching for a cricket. I have been known to remove just 1 leg! Yes, I have found them! My hubby knows that I am serious when I am outside with either bug killer or down on my hands and knees! Don't tell Peta!

                        Like we all know...sleep is way to precious!

                        Comment

                        • #13
                          I sleep with a big box fan running every night. I also wear ear plugs to muffle the loud snores and snorts coming from the other side of the bed. Tom likes to face me when he's sleeping....likes to cuddle too. It would be fine except he positions his mouth right over my left ear! Snooooooooore, snoooooooooore........snoooooooooooort! Ahhhhhhhhhhhhhhh.

                          Anyway, I'm glad you're feeling better today!

                          ps...does taking one leg off a cricket make them shut up? LOL
                          *IC-- Summer 2004; PFD--October 2005
                          *Fibro--Fall 2000; CFS-- Fall 2000
                          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                          Total Abdominal Hysterectomy--adenomyosis--9\08

                          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                          Comment

                          • #14
                            Well, yes, Sandy, it ought to -- that's how they make their crickety sounds, by rubbing their legs together.
                            Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                            Wishing you happiness and good health, and all the best out of life.

                            Peace, Carolyn
                            ___________________________________________________

                            Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                            On the Beach with IC

                            Comment

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