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  • #16
    Sorry your feeling so bad. Get your self some med. care and take care of yourself.
    Interstitial Cystitis Stomach problems
    diastolic dysfunction
    vascular insufficency of left leg
    pelvid floor disorder
    hypothroidisim
    asthma
    bread cancer - 5yrsl. remission
    swollowing difficulty
    fatigue
    lots of doctors
    lots of med.














    Keep your eyes on the Lord and he will direct your paths.

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    • #17
      Sandy,
      Just having talked to you I know how rotten you feel, please take care of yourself! If you aren't better and don't go get yourself checked I will hunt you down, you know that! I hope you feel better soon.

      Hugs,
      Barb
      (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

      [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
      :angel: IC Angel Volunteer Coordinator :angel:
      :) Contact me via PM or e-mail if you would like to help
      I have learned all about life in 3 words: It goes on! :D--Robert Frost
      PCOS 7/85
      RSD 7/94 :headbang:
      Endometriosis 9/98 :toilet:
      Antiphospholipid antibody syndrome 9/99
      Kidney stones--too many to count
      Factor V Leiden mutation 10/02
      IC 6/03 :evilsmile
      Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
      "Spirit is an invisible force made visible in all of life"--Maya Angelou
      "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

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      • #18
        Hope you are getting the attention you need ,In the er sending prayers .
        Sandra
        "Never Give Up."

        To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

        My Photobucket Link:
        http://s237.photobucket.com/albums/f...ramack_photos/

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        • #19
          Sandy I am so sorry you feel so sick. I hope the doctor call you back and hope you can get help soon.

          Sending hugs, Trishann

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          • #20
            Oh boy..............I hope you feel better soon. Please keep us posted. Hang in there.
            Mel


            IC, PFD, IBS, Allergies, Chronic Migraines, CVID, Fibromyalgia, CFS, Numerous Laporoscopies for Endometriosis and Adhesions, Hysterectomy 2002

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            • #21
              Any news Babs on how shes doing>? I hope she is more comfortable today!

              Erika
              IC diagnosed officially via cysto/urodynamics 1/26/07

              Grade II Endometriosis diagnosed via lap 12/11/07

              "Fall down seven times, Stand up eight."

              "Life is a tragedy for those who feel and a comedy for those who think."

              Current Treatments:
              Interstim Since 5/25/07!
              Birth Control

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              • #22
                Sandy, just worry about you. Hope you are ok and feeling better today.

                Sending hugs, Trishann

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                • #23
                  I hope you feel better soon!

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                  • #24
                    Does anyone know how Sandy is?
                    http://www.TheCraftyEwe.etsy.com

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                    • #25
                      Sandy,

                      I am growing increasingly worried about you. I hope that you went to the ER and got things checked out and are feeling better by now. If anyone hears anything from here, please post. I am just really worried.
                      I hope you are okay.

                      Hugs,
                      Amy

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                      • #26
                        I feel the same way Amy. Everytime I sign on I keep on looking to see if Sandy has come back and posted or if anybody else has heard from her and posted. I really hope that she's okay.
                        Christine



                        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                        I have tried every oral medication as well as rescue instills and DMSO.

                        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                        Also proud mom to the best Bullmastiff on earth, Claus

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                        • #27
                          Sandy

                          Sandy,

                          Thinking of you and wishing that you are getting well!

                          Kara
                          Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                          "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                          I also have some journals of my journeys, past and some present at:
                          http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                          Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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                          • #28
                            Sandy,

                            I hope you are getting well!! Hugs and prayers sent your way!!

                            Di

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                            • #29
                              Sandy,
                              Hope to hear that you are feeling much better soon.
                              hugs,
                              Janie

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                              • #30
                                Oh, Sandy, I'm so sorry you are hurting so badly, kidney infections are horrible, and I know you are in excruciating pain. I'm so sorry.

                                I hope that you got to be a direct admit so you didn't have to sit in the ER, and I hope this kidney infection didn't hurt your kidneys or anything. I hope they gave you IV antibiotics to clear up the infection right away.

                                I'm worried too that you haven't checked back in, but perhaps the doctors found kidney stones that were too big to pass, when they gave you tests, and maybe they decided to operate on you right away since you were already in the hospital. I know many people who have had big stones removed, and they were just fine once they healed up from the surgery. In fact they feel a lot better because they don't have that awful pain and infection and everything that can come from that.

                                I hope so much you will be released soon (I know they keep people in the hospital for awhile after kidney stone removal, if that is what you needed to have done, I don't know) and that you will be able to tell us you are feeling 100% better!

                                Blessings and prayers,
                                Lori

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