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  • #1

    What the....

    heck is going on?!?!?!?!?

    I was FINE. Symptom free. Only peeing a bit more than normal (but I was drinking more too). No burning. No pelvic pain. No NOTHING!!!

    Then I go to void after dinner. And IT BURNS!!! BAD!!! WHAT'S GOING ON?!? I can't figure it out. It could be several things:
    -maybe I'm getting my period
    -maybe it was the cookies I ate
    -maybe it's my back
    -maybe it just burns because it can
    -maybe it's becuase I took 2 ibuprophen for back pain

    Either way. My back has been bothering me SO much today. I guess it could be that. I don't know.

    Took a Tramadol. That helped. Except it's making me nasueous and dizzy. Can't concentrate on the TV (wathinch my favorite TV show--LOST--to keep my mind off the pain). Not planning on using the TENS unless it gets worse. It's too much of a pain at this point with the cleanig and electrode placing and the wires (someone should have invented a wireless TENS unit by now)...I'm just so confused an upset about the pain. I was doing so well, now this...

    At least I know it's going to get better.

    Sorry for the sort of...ventage...there was no real question in this post. I just need to vent to people who understand.


    Thanx

    Medical "Issues":
    IC
    GERD
    Tachycardia(resting rate is 125-130 )
    Medicastions:
    Tramadol-as needed (IC)-50mg
    Elmiron 200mg twice a day
    Levsin .125mg 1-2 pills 4 times a day
    Tags: None
    • #2
      Merry,
      I am really sorry that you are feeling so crappy. I hope that you were able to get your pain under control and are happily in dreamland as I type this.

      ~Claudia

      "A heart is not judged by how much you love; but by how much you are loved by others."
      ~ The Wizard of Oz

      "If I ever go looking for my heart's desire again, I won't look any further than my own
      back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy

        Comment

        • #3
          Merry..
          I know when I took some Motrin a while back, I had the worse burn ever..I know it was that, because I had not drank anything but water nor had I eaten anything...
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #4
              I suspect it was the ibuprofen --- it's a problem for lots of us.

              I hope you feel better this morning.

              Warm hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

                Comment

                • #5
                  Thanks for all the support.

                  The burning finaly stopped. I went to the bathroom three times this morning and by trip 2 there was little to no burning.

                  I think it's the ibuprophen that did it. If it were caused by food, I would have felt a burning and fullness in my abdoman. But it was only my urethra that burned.

                  Going to go lay down now. Still have a buzzy feeling from the Tramadol.

                  Medical "Issues":
                  IC
                  GERD
                  Tachycardia(resting rate is 125-130 )
                  Medicastions:
                  Tramadol-as needed (IC)-50mg
                  Elmiron 200mg twice a day
                  Levsin .125mg 1-2 pills 4 times a day

                    Comment

                    • #6
                      sorry that you were in flair.. glad that you are feeling better now
                      'The will of God will never take you where the Grace of God will not protect you.'

                        Comment

                        • #7
                          Ibupophen is a big no-no for me! I'm glad that it is resolving itself.
                          Mel


                          IC, PFD, IBS, Allergies, Chronic Migraines, CVID, Fibromyalgia, CFS, Numerous Laporoscopies for Endometriosis and Adhesions, Hysterectomy 2002

                            Comment

                            • #8
                              After 5 days of on and off burning (and one day of frequency) it finaly just went away. Only now, out of the blue, I'm so tired I can't keep my eyes open. Took a nap. Woke up and am nauseous as hell. Probably going to throw up soon :-( I took my temp and it's 99.9. So not really a fever. My back has been hurting more than normal too.

                              Should I be worried about a kidney infection? I have an appointment with the uro on Monday. Should I wait until then or go to the ER if it gets worse? Or could it be the flu and I'm over reacting?

                              Medical "Issues":
                              IC
                              GERD
                              Tachycardia(resting rate is 125-130 )
                              Medicastions:
                              Tramadol-as needed (IC)-50mg
                              Elmiron 200mg twice a day
                              Levsin .125mg 1-2 pills 4 times a day

                                Comment

                                • #9
                                  Maybe you could call your Doctor

                                  If you feel that it's getting worse that temp goes up...Maybe you could call your Doctor that you are seeing on Monday. Maybe he/she will be able to tell you what to do. But if that doesn't happen fast enough for you and you are suffering beyond what you feel you can handle, then maybe the ER or Urgent Care would be helpful.

                                  I certainly hope you feel better and get the proper help you need!

                                  Well Wishes,

                                  Kara
                                  Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                                  "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                                  I also have some journals of my journeys, past and some present at:
                                  http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                                  Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                                    Comment

                                    • #10
                                      my money is on the Ibprofin you took....that stuff gives me a flare EVERY TIME!

                                      drink tons of water and flush that crap out of your bladder asap!
                                      Erika
                                      wife to Jeremy
                                      mom to Emma (3-8-05)
                                      and Natalie (7-23-07)


                                      Meds i'm currently taking:
                                      Lortab as needed for pain

                                      Meds that did not help:
                                      Detrol LA
                                      Lexapro (caused urgency)
                                      Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)


                                        Comment

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