Announcement

Collapse
No announcement yet.

I'm alive

Collapse
X
Collapse
 
  • Page of 2
  • Filter
  • Time
  • Show
Clear All
new posts
Previous 1 2 template Next
  • #1

    I'm alive

    I didn't go to the ER but finally took my stubborn butt to the uro. Got a shot of abx in the butt, and a bottle of macrobid. He thinks I've got stones up there so if the pain gets worse I'll have no choice but to go to the hospital. I know thats where I should have gone in the first place but I just didn't want to. I have terrible veins, I'm on so many pain meds that I DON'T want to explain, and just really, REALLY didn't want to be admitted. Granted, the doctor wasn't pleased that I didn't want to go, but he consented on the grounds that if I got worse I would go.

    I've been bedridden for days now. Just got up and about today and I'm so weak and sweaty. The pain is much better now that I've had the abx. There for a while there weren't enough pain meds on the planet to keep me comfortable.

    I think I'm on the mend. Your posts made me sniffle, and I really appreciate that you guys care so much!

    I'm sorry I worried you guys, I just couldnt get on here, much less sit up.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.
    Tags: None
  • #2
    I am so glad you are sorry you you are sick and not feeling well. gining you a big cyber hug and hope you feel better soon
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment

    • #3
      (((HUGS)))) Well I am glad your up and about. Those stones are nasty. Glad you got your tush to the URO and got some antibiotics.

      Comment

      • #4
        I am so relieved to hear from you. I am glad you are on the mend and back with us.
        Sharon

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.



        Link to the ICN Patient Handbook:
        http://www.ic-network.com/handbook/

        Link to the IC Diet:
        http://www.ic-network.com/diet/


        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          Thanks everyone. I'm surprised you guys haven't 'yelled' at me yet for not going to the hospital. I know Tom was SO angry at me...he was just worried and mad that I was so stubborn. I know you guys know what I mean when I say I just didn't want to deal with the nurses and doctors in the ER. I didn't want to explain my pain meds, and I didn't want to be stuck multiple times to get an IV started. I was so miserable all I wanted was my bed. I told my uro all of this too, and being the kind man that he is he gave me my way, for now.

          I figured, in my own twisted way, that if the pain got any worse I'd call an ambulance so THEY would start the IV in the truck, (they're great at it!) then I'd go right on back and be admitted and not have to deal with the politics of the ER.

          I have to admit that I'm really worn out just from being up a couple hours today and missed my kids swim meet, but there was just no way I could spend a few hours in an 85 degree, humidified room with a ton of other people...

          I'm SUCH a lousy patient!!!!!
          *IC-- Summer 2004; PFD--October 2005
          *Fibro--Fall 2000; CFS-- Fall 2000
          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

          Total Abdominal Hysterectomy--adenomyosis--9\08

          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

          Comment

          • #6
            Oh geesh Sandy I hate them dang stones.. Its not enough we hurt so bad with IC and with stones its 10 times as bad....I hope you get to feeling better soon.. Sending lots of hugs your way...
            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #7
              Hey Sandy.... great to see you back I'm not going to yell at you for not going to the ER. I never go. Even when I should. Once I waited all weekend to go to my free employee health clinic rather than brave the ER. Once there, I had such a bad bladder/kidney infection, just so many white cells and so much blood, that the doc on duty there made me have a surgical consult because he was afraid something had ruptured (ie, bowel perforation, etc).

              Yep, I should have gone to the ER over the weekend. But, like you, explaining would have just worn me out and I didn't want to be admitted either.

              I am glad you are on the mend and the antibiotics seem to help. Do go to the ER if things worsen despite the meds though, OK?

              ****
              Jen

              *Diagnosed with severe IC in 2004
              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Comment

              • #8
                So glad you are feeling better!

                Sandy,

                I'm so glad you are feeling a bit better today!
                I understand about the IV's. I'm a real hard stick. Plus when you are in that much pain, it's so hard to explain the allergies and the medication situation.
                I'm at the point too, where if my pain is bad enough, I will call 911. They are very nice when they come into your home territory. Granted that sort of pain level to me doesn't come easily. I hear you!
                I hope you continue to improve as the days move forward.

                Well Wishes!

                Kara
                Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                I also have some journals of my journeys, past and some present at:
                http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                Comment

                • #9
                  Can't yell at you either, it is just such a relief to know you are doing better now. Hope you continue to do so, Sandy.

                  Sending hugs, Trishann

                  Comment

                  • #10
                    So glad to hear you're going to be okay Sandy. I think we were all worried that we hadn't heard from you in so long. Take it easy and hope you feel better soon.
                    Christine



                    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                    I have tried every oral medication as well as rescue instills and DMSO.

                    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                    Also proud mom to the best Bullmastiff on earth, Claus

                    Comment

                    • #11
                      Since you've already yelled at yourself, I won't yell at you either. I know that if it gets worse you'll go in. In the meantime, I'm sending a warm hug and well wishes.


                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

                      • #12
                        No yelling or lectures. Just lots of...
                        Annie

                        IC
                        Ulcerative Colitis and IBS
                        Pelvic Floor Dysfunction
                        _________________________________________________________
                        Retirement is great! Work is highly overrated!!!
                        ---My dear hubby
                        ________________________________________________________
                        Never go to a doctor whose office plants are dead.
                        ---Unknown

                        Comment

                        • #13
                          Oh just glad to hear from you!! YAY!! Sending lots of positive energies your way!!
                          Hugs,
                          Tracey
                          How do you eat an elephant? One bite at a time...

                          Harry arrived 2/23/09!



                          *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                          IC Diet Cheat Sheet:
                          http://www.ic-network.com/diet/2009icdietlist.pdf


                          Dx's:
                          IC dx'd Nov 2004
                          Lymphocytic Colitis dx'd July 2005
                          Possible IBS
                          Current IC Meds
                          Vistaril 25mg in the evening
                          Previous IC Meds taken:
                          Cystoprotek - 2 caps 2x's a day
                          Elmiron, 100mg 3x's a day
                          Ditropan, 5 mg 3x's a day
                          Others:
                          Wellbutrin 150mg 2x's a day for Anxiety/IBS
                          Pepcid 40mg a day for GERD
                          Zytrec for Nasal Allergies
                          Align Probiotic daily for IBS

                          Comment

                          • #14
                            I'm so glad you are okay! I hope those stones don't give you any more problems!

                            Blessings,
                            Lori

                            Comment

                            • #15
                              Awwww....I'm so sorry you are suffering like that!

                              I know JUST what you mean about not wanting to go. I can't ever get stuck proper either and yep, the guys in the truck always do it without me knowing it. (butterflies work wonders!)
                              I never want to leave my kids either especially since I really don't have anyone to watch them. But I sure hope you'll go in if you get any worse.

                              So do you have a kidney infection along with the stones? Any one of these things (IC, Stones, Nephritis) are bad enough on their own. But all together is enough to ask for a gun.

                              Hugs from me to you and please get well! Love you lots!

                              Moonheart
                              http://www.TheCraftyEwe.etsy.com

                              Comment

                              Previous 1 2 template Next
                              Working...
                              X