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Is it ok to take a nasal decongestant ??

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  • Is it ok to take a nasal decongestant ??

    Hi Again Gals.
    Gosh I am beginning to feel like a big pain in the butt here with all my questions, I am sorry.
    I am pretty sick right now with this awful flu bug and my nose is completely stuffed and I cant breathe at all and am miserable. I was wondering if taking a nasal decongestant like sudafed would be ok? I thought I read somewhere that it can aggravate IC, but I was just wondering if any of you ever take a nasal decongestant when you get sick? I have not slept hardly at all last night and am exhausted but am feeling so bad. I always use to take theraflu with no problems, but I have not had to take it lately so am not sure if it would bother my IC or not. Just wanted your thoughts. Thank you gals.

  • #2
    Hi Jen,
    I haven't taken any myself. When I had my first cold w/ IC I asked the same question and several people told me that they couldn't handle decongestant. I decided that I would rather have the stuffy nose than have a cold and a flare so I didn't take it. Obviously everybody is different though. If you really want to take it maybe take it w/ some prelief and drink lots of water? Hope you feel better soon

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      Decongestants are something a lot of ICers can't handle... I don't know if I can or not, since I never take them anyway. For me, Sudafed is like taking a sugar pill -- doesn't work AT ALL. Oh well...

      Some say sprays like Afrin work well, although you should definitely follow the directions and use it only every 12 hours and for no more than three days. If you use more than that, sometimes your nasal membranes get used to having it around, and you end up with swollen passages that won't unstuff unless you use your spray. This happened to my husband (dummy, huh? ) and I had to send him to my allergist for some steroid spray to break the cycle.

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4

        I've taken CLARITIN with NO PROBLEMS

        I think its the stuff w/ alcohol...that we CANT NYQUIL
        Quit ELMIRON due to hair loss
        Cystoprotek ROCKS!

        find me on FACEBOOK -
        search my email [email protected]

        Current Meds:
        AM Cystoprotek & ATARAX 50mg
        Dinner CYSTOPROTEK
        PM Elavil 25mg