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painful weekend

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  • painful weekend

    This weekend has been awful. I have called in sick to work twice, I'm probably going to be in trouble over that. It started with what I thought was just a flare but it has gone way wrong somewhere. Now I have back pain, fever/chills, nausea/vomiting. It's like I felt at Thanksgiving when I had pyelo. Exactly how I felt when I had pyelo. I have what I thought was flakes of tissue in my pee, husband says he thinks they are infection. Does anyone elses's family take such an interest in what your pee looks like? I guess I should be thankful he cares. It's beautiful weather here, in the 70's and I have been chilling in a sweatsuit with 2 comforters on me and the heat on trying to get warm. THIS SUCKS!
    IC found on hydro 2/2004, total hysterectomy, rectocele and vaginal wall reconstruction 2/2004.
    I have had previous Heparin instills that worked great.
    8/2007 Pain, urgen/freq returned.
    Since then I have had weeks and weeks of instills,
    PFD diagnosed 02/2008 finally


    Fentanyl patch, Hydroxyzine, Klonopin, Tizandine, Climara patch

  • #2
    HI! Sorry you are having such a yukky weekend. It seems we wait all week for the weekend to sucks when you are feeling bad.
    Sounds like you have more of a flu than a flare. I've never heard of having a temp. with a flareup from IC.
    My husband is always very concerned when I'm feeling bad or having 'down' days. I think we are in the 'lucky few' who have such a great husbands!
    Hope you feel better soon! Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


    • #3
      I'd get to the doctor soon. It sounds like you've got a uti that got into your kidneys, which man, I know sucks. That would fit the flu+flare description pretty well. Even if it's not a uti, best to rule that out.


      • #4
        I am sorry you are flaring...
        There is alot of people who say they have white tissue in there urine..My dr said it was a part of having IC...

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.