
For those who don't know have worsened IC symptoms for months now and docs didn't know what to do but amitriptyline(elavil) 10mg- then 20mg helped the constant urge so as to give me a few hours relief and after a hydro and a few weeks on the amitriptyline was feeling like I could deal with a few flareups a day and night.
Then ran out of Elmiron and got worse- I thought it was due to that, so fought to get back on it(doc thought it wasn't helping)
Was told to increase amitriptyline as needed - 30mg helped a little more, but still flaring just no constant urge just flareups of urgency and frequency
ie relief till 11/12 then flare flare flare for 3 hours etc
Got back on Elmiron a month ago and week before last - out of nowhere for 4/5 blissful days had little symptoms. Was amazed - for over a year not been able to hold more than 200ml and that was maximum - my voids have been 150 to less than 50 off the Elmiron.
So was feeling good frequency wise and no urgency so measured and was 350ml! Stayed this way and got to do loads of cooking, cleaning and cleaning and since then - over a week- been FLARING big time.
Am soooo disappointed and have no idea why so have come on here.
I have been bad and off work for 8 months now so used to flaring and one step forward with a few hours relief and lots of steps back 2 hours later.
It's just sooo hard to stay optimistic - was over the moon in Dec when I starting feeling a little better ie constant urge gone and last week when I had almost no symptoms apart from a little urgency and irritation for half an hour after voiding.
Have NO IDEA why though - I have tried to go back to a diet of no foods on the IC no no list although my diet has not changed - had the odd migraine and those meds exacberate symptoms but not this much
Am on here at 4 am now, as bladder is soo bad that tramdol, pyridium, bicarb and heating pad not helping! No infection though as did a dipstick test and will hand in a sample just in case but it seems like a flare as symptoms wax and wane........
am extra upset as have been living with parents as symptoms bad so can't work or support self and do all househould stuff - was getting back to doing little things like local shops as long as loos nearby but been stuck indoors all week as urgency and most of all pain is soo bad. Parents are away on hols and it's homed in on how little I can do when flaring like this
sorry for the pity party!
Comment