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  • #1

    Nurse called, no UTI

    Well, the nurse called and said I dont have a UTI, that my culture was clear. I swear I feel like I have one though. I am in so much pain. The nurse said I really have to get these instillations on Friday. I hope I can last until then. This pain is so bad. My bladder feels like there is a raging fire in there.

    I have some lyrica here I am suppose to start taking, just that I am so scared to try these meds. Do you gals think I should try it? What if it makes me feel worse? Pyridium does not do anything for me as far as pain. It actually makes me feel worse as far as the emptying the bladder feeling. All I have is tylenol to take, which does not help either. Maybe I should fo ahead and take the lyrica. I just am at a loss here. Friday is so long away, And what if that instill makes me worse. Oh, I just cant imagine being worse.

    SOrry for crying ladies, I am just in so much pain right now. I also have my period since Friday. I am sure that is making it worse. Thanks for listening.
    Jen
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  • #2
    Sounds like you need to try the Lycria......maybe it will help since it's a long time till Friday.......Hope you feel better! Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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    • #3
      I hope so much the Lyrica will help! Some people have reported it really helps them!

      If not, maybe it's time to talk seriously with your doctor about pain management - about a referral maybe to a clinic, or about being prescribed some pain drugs to use when you are in a bad flare.

      For me, my best friend when my bladder is hurting is a hot water bottle, filled with nice hot water. One of those red rubber/plastic things that has a stopper you screw into the top? Sometimes they are sold as douchebags or enema bags. Usually they are kind of on the bottom shelves of drugstores or Wal-mart or what have you.

      Hoping you feel better soon,
      Lori

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