Hi gals.
Well, the nurse from my urogyne's office called me back and said that she talked to the doctor and that she said she does not prescribe any type of narcotics to her patients with IC. She said that she uses the instillations.
I told the nurse that I was in a lot of pain and that there are days that I just wish I dont wake up anymore. She told me that I should go to the ER if I am having suicidal thoughts. I was thinking, yeah, so they can send me a huge bill right?
I told her I was just trying to make a point of how much pain I am in. She said that the instills are the only thing that really works the best. She said the doctor said that if I was in this much pain, that I may have to do 2 instills a week instead of 1. I dont even know how I am going to afford the 1 a week to be honest. I just pray it helps. But the way it looks, even if it does help, they wont let you learn to do them on your own. They want to make money it seems.
I dont know what I am going to do if these dont help or if the lyrica does not help. She does not seem to be offering any other treatments options in terms of pain relief. I have no clue as to where else to turn if this does not help as I am running out of options and cant seem to find any good Dr in my area who is knowledgable or willing to actually help the patient and not their pocketbook. Any suggestions?
I go for the instill Friday. They did not even bother to bump up my appointment either. I mean how much time does it actually take to put in the instill? I cant believe they are that busy that they could not get me in sooner than Friday knowing how much pain I am in. This is ridiculous. I am so scared. God forbid if I should get worse or my bladder shuts down, I would not trust any of these doctors to care for me I dont think. This is scary. I feel so alone.
Jen
Well, the nurse from my urogyne's office called me back and said that she talked to the doctor and that she said she does not prescribe any type of narcotics to her patients with IC. She said that she uses the instillations.
I told the nurse that I was in a lot of pain and that there are days that I just wish I dont wake up anymore. She told me that I should go to the ER if I am having suicidal thoughts. I was thinking, yeah, so they can send me a huge bill right?
I told her I was just trying to make a point of how much pain I am in. She said that the instills are the only thing that really works the best. She said the doctor said that if I was in this much pain, that I may have to do 2 instills a week instead of 1. I dont even know how I am going to afford the 1 a week to be honest. I just pray it helps. But the way it looks, even if it does help, they wont let you learn to do them on your own. They want to make money it seems.
I dont know what I am going to do if these dont help or if the lyrica does not help. She does not seem to be offering any other treatments options in terms of pain relief. I have no clue as to where else to turn if this does not help as I am running out of options and cant seem to find any good Dr in my area who is knowledgable or willing to actually help the patient and not their pocketbook. Any suggestions?
I go for the instill Friday. They did not even bother to bump up my appointment either. I mean how much time does it actually take to put in the instill? I cant believe they are that busy that they could not get me in sooner than Friday knowing how much pain I am in. This is ridiculous. I am so scared. God forbid if I should get worse or my bladder shuts down, I would not trust any of these doctors to care for me I dont think. This is scary. I feel so alone.
Jen
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