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Remission is OVER- Full blown Flare in Swing

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  • Remission is OVER- Full blown Flare in Swing

    Oh yes, this is wonderful. It is 12am, and I will up all night in pure pain. Gotta love this

    I was in remission for 3 months, now I am remember what praying for death is like

    I have been going every 5 seconds and it is all blood.
    Last edited by asmashly; 03-20-2007, 08:37 PM.

  • #2
    Nowadays I always pray not to wake up in the morning as I cant stand all this pain. It is no way to live. I feel for you and hope you feel better soon.
    Jen

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    • #3
      well..

      well...we need to figure out...what caused the flare.

      Do you think it was something you ate?
      Quit ELMIRON due to hair loss
      Cystoprotek ROCKS!

      find me on FACEBOOK -
      search my email [email protected]

      Current Meds:
      AM Cystoprotek & ATARAX 50mg
      Dinner CYSTOPROTEK
      PM Elavil 25mg

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      • #4
        Is all that blood typical of your flares????? Sounds like you could have a major infection or something else going on. I'd get checked out in the morning for sure.
        Kim

        Diagnosed August 2001

        Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


        Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

        I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

        *****************************

        “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

        “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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        • #5
          I absolutely agree with Kim. You need to see your doctor ASAP.

          Sending warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Thanks, I am calling my doctor. I feel somewhat better-well maybe better is not the best word, but I am alive.

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