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Anyone else have to pee right after they just went??

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  • ICNDonna
    replied
    First of all, I'd like to say to the IC Network family. I know you'll find a lot of information and support here.

    To try to answer your question --- I'm assuming that when you urinate, it's in very small amounts. Our kidneys do constantly dribble urine slowly into the bladder, where it's held until we either reach capacity or become painful because of bladder irritation. Sometimes urine can be extremely irritating to a raw bladder lining, maybe due to having interstitial cystitis. There are some things that work for IC that can help with frequency. Number 1 is to be sure to drink enough water (my goal is six to eight cups a day) so the urine doesn't become concentrated. Sometimes taking an antispasmodic works (I keep hyoscyamine on hand, but there are others). Elavil (an antidepressant) can help because it interferes with the pain receptors in the nerve system. There is also pyridium, which turns the urine orange and stains everything. If you opt to try it, I suggest you also use panty liners so you won't have orange colored crotches in your underwear. Pyridium is available over the counter for short term use under the name AZO.

    I hope you feel better quickly.

    Warm healing thoughts,
    Donna

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  • Sparkles92
    replied
    Hi I am 21 and suffer from an overactive bladder. I've recently had a bladder and kidney scan which came back normal. My bladder can fill and empty as it should. The thing is I can urinate up to something around 20 times plus in an hour. If my bladder is empty where is the water coming from as after it's empty I still need to urinate and it's worse at night. I've lost two jobs because I'm constantly going to the toilet. It's ruining my life I just want to rip my bladder out of me. Please please help me

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  • Trishann
    replied
    Me too Lesa, I envy you. I wish I have the courage to have this surgery but I just can't bring myself to do it.

    Sending hugs, Trishann

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  • GriffsMommy
    replied
    I've been having some of these same problems as well. I got a yeast infection and that just seemed to throw everything out of whack. But with me I feel like I don't have any urine left but then like Sharon, I would wipe a couple of times, actually I was more like dabbing because I was sore and when I would dab on my urethra more urine would come out. It really freaks me out because I can't even tell that there is more in there and then all the sudden there it is. I also have noticed that when I stand up and start washing my hands, the sound of the water makes me feel like I have to go again. This really drives me crazy when I'm at work. I can't wait until my uro appt on Friday!

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  • TexasHoney
    replied
    I have this symptom quite often. It is soooooooo frustrating it makes me want to scream. When I am flaring real bad I am only able to pee anywhere from a few drops to about 3 or 4 ounces. Ten minutes later I am back on the toilet again. For me lately I rarely reach the 9 ounce level. I am am kind of envious of that. LOL!

    Take Care
    TexasHoney

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  • jen74
    replied
    Hi Kim.
    I have been keeping a diary of what I drink and how much I go. I have no clue as to what would be considered normal though. There are some days I pee more than I drink and some days I pee less than what I drink.
    I already know that I am retaining some urine as I can pee more out shortly after I go at times. As far as dealing with the nurses, well I have no choice in that matter really. I have to leave a message with the nurses in order for it to reach the doctor. It is ridiculous.
    It does seem that I can only lately get out no more than 9 ounces of pee at a time though, where a couple weeks ago I could get out 12. I am not sure what amount is considered normal or not as I really think it depends on how our kidneys are working. But I do feel like I am retaining urine in my bladder after I pee.
    Jen

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  • vm
    replied
    It sure is the worst feeling, jen. That was how my flares were all the time - it's an awful feeling.

    If I was concerned I might be retaining, and my nurse/doctor was not on board with that, I would probably keep a voiding diary where I write down when I peed and how much I peed each time for a few days. That way you have something black and white they can look at to help you figure out if it is just a flare or if something else might be going on. For me - it always felt like I had to go and I wasn't retaining, but some ICers do retain and it's worth checking out if your gut feeling is that that is what's going on.

    Another thing - I don't like to deal with my uro's nurses at all. My family doctor? His nurse is great. But when I need to run something by my uro I leave a message asking if he can call me back whenever he has time - which might mean the next day, but I have a concise list of questions down on paper to ask him so I can be as quick as possible while still hitting my main points.

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  • mary124
    replied
    One thing that I will do, especially at night so that I won't have to get up again, is once that I'm done, is to lean forward and get up just a little bit, and then sit back down. (my friend who has one kidney told me to do this and it seem to help-- I get the rest of it out).

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  • jen74
    replied
    Thanks for that info on PFD. It is possible I have PFD I suppose. It is just weird because, I have no issues when starting to pee. It comes out fine, just that it reaches a certain point and then just stops and I cant get no more out. Really weird.
    I know when I am retaining because there were times when I could pee out like 12 ounces and feel empty, but lately I cant get out anything over 8 ounces at a time now. And at that point I really have to go baaaaad.
    My hubby suggested that maybe trying to hold it a little longer then maybe I would be able to get more out because of the vloume. This is just the worst feeling. Thanks again for replying.
    Jen

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  • leelee88
    replied
    Jen another thing that causes retention is PFD.. Heres some info on it..

    What is PFD

    --------------------------------------------------------------------------------

    What is pelvic floor dysfunction (PFD)? This is non-neurogenic, uncoordinated behavior of the pelvic floor musculature. This is not like Parkinson’s or multiple sclerosis. This is a person who has no obvious neurological disease and the muscle function is uncoordinated. normally the bladder sits in a funnel of muscle. When one voids, the muscle of the bladder contracts, thereby forcing out urine. At the same time, the muscles of the pelvic floor, the levator muscles, and the muscles of the GU diaphragm have to relax. That is the normal process of voiding; it is a complex neurological mechanism. When this happens, there is a good stream of urine. In a patient with PFD, the bladder contracts and the muscles open up, but they are in spasm. They are not working properly. They open and urine does come out, but this can lead to disruptive symptoms.

    The symptoms of PFD are similar to IC. A patient with IC typically has pelvic pain, the pain often worsens with bladder filling. They usually have day and nighttime urination, and their symptoms are affected by foods, in many instances. The patients who have PFD have similar complaints with a subtle difference (keep in mind that PFD can coexist with IC): IC should not normally result in a poor urinary flow rate. One exception is that if you are urinating tiny volumes each time, you will never be able to generate a good force of the urine stream. If you still have a poor urinary flow rate, that is suggestive of something else going on. In a male, you have to consider the presence of the prostate gland, which can also be causing problems. The first focus of attention in a male is typically on the prostate as a cause of blockage.

    Constipation can also exist in a patient with PFD. Constipation occurs for the same reasons a patient will have problems with urination; the patient tries to push out the bowel movement, but the muscles around the anus and the pelvic floor muscles are contracting at the same time. The stool sits in the rectal vault.

    There are two different types of complaints regarding intercourse: either there is terrible pain during intercourse because the penis is coming directly into the rigid muscles, or there is discomfort the day later. This is commonly seen in both IC and PFD patients.

    Many patients have the sense of incomplete bladder emptying. They feel like they have to void again as soon as they are finished. Some patients cannot empty their bladder. Usually patients who have just PFD and no significant IC do not have nighttime frequency. They just have frequency during the day. There is also a typical history of straining with urination. It is interesting to see the number of patients who say they don’t strain, yet during testing that is performed, they are straining quite a bit.
    __________________

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  • SharonA
    replied
    One thing that helps me get the rest out is to wipe with clean TP a couple of extra times. For some reason, that seems to stimulate my urethra to release what is still there.

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  • jen74
    replied
    Thanks ladies for the replies.
    Thanks for the tip Donna. I went pee and then got up and had to walk around for a minute, but was still only able to get only one more ounce out, but it still feels like I have more in there.
    I do drink alot af water, usually 2 to 3 liters a day. I am thinking maybe I should not drink so much especially if I am retaining urine and not emptying my bladder completely which is what feels like is happening.
    When you ladies talk about flares, I am guessing you have times when you feel better. I am always in exteme pain with this lately for the last few months. I seldom have a day that I am not in alot of pain or not in a flare. Is it normal for a flare to be continuous all the time. ALso I am worried that by me not emptying my bladder all the way, I will end up getting an infection. This stinks and the doctor I have is really no help. All I get are the nurses who are no better really. They just keep saying to wait until Friday until I do the instillation. Thanks again for all your replies.
    Jen

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  • leelee88
    replied
    Yes like the others said this is the way a flare starts.. I am like kjd I went like this for almost a year until my GYN put me on elavil, What is making you have that sensation is a nerve pain.. Your bladder is very sensative and has alot of nerves in it.. I have found that when I am having a flare to drink more water I know this sounds crazy but it will dilute your urine and stop the burning you are feeling..
    Good luck and God Bless You

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  • ICNDonna
    replied
    One thing that might help is to stand up part way after you urinate, then sit back down --- sometimes that will help to get that last little bit out. Just remember to avoid straining.

    Donna

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  • kjd
    replied
    Oh yes all the time and for 2 yeas none stop!
    It drives me crazy running to and from the loo not knowing what is going on! Then is goes...then comes back etc etc!!!

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