Thanks Ladies.
I have absolutely no luck with doctors. Believe it or not, I also thought because I live in Chicago that there had to be some good doctors, but that is just not so, and believe me, I have searched. I have a neuropathic dysmotility of my small bowel and it took me 7 gastro docs before finding one who knew anything and was able to diagnose me correctly.
I am at my end here as far as urogyne's go or findind a doc who is willing to help me better. This urogyne supposedly knows about IC, she even does the latest instills using lydocaine,steroids,heperain,and biocrab. But she does not have a great bed side manner. She lets here nurses do all the calling when there is a problem, which I believe is wrong. I have been to 2 urogyne's and 1 urologist so far in the last year since all this started. They are all about the same. None of them are willing to presrcribe pain meds though it seems. I was given ultram by the first urogyne, but it made my heart race so I cant take it.
I really dont think my family doc will help me either as far as pain goes. She will say that I need to see the urogyne for that pain. It is a no win situation really. I may ask for a referral to a pain doctor though. But I seriously doubt that this urogyne will refer me to one. No one should have to live in pain like this.
I go tomorrow for the instill and am scared to death that it will make me worse. I tend to have all kinds of weird reactions to things. Part of me wants to back out, yet part of me knows that I have no choice as I am in pain and need to get help. The nurse I talked to claimed that this instill should not make me feel worse at all. She said they help most people and it is really the only thing that works well with controlling pain. I am suppose to do 6 treatments( 1 a week). But she said the doctor said I may have to do twice a week. But I wont be able to afford that.
I am scared ladies about tomorrow. What if it makes my pain worse, and this doctor wont give me anything for the pain, that I am sure of. I feel so backed up against a wall. I know I need to do something to try and help this pain, but I feel that I dont know if what I am doing is right. I mean is it safe to do those instills really? I mean it just does not seem natural, but I am in so much pain that I have to do something.
I am also worried since I know I am not emptying my bladder 100% each time I pee. What I get that instill and after I pee, dont get it all out? Would it be safe for some of it to stay in there? Geez, I pray I wil even be able to pee afterwards.
Jen
I have absolutely no luck with doctors. Believe it or not, I also thought because I live in Chicago that there had to be some good doctors, but that is just not so, and believe me, I have searched. I have a neuropathic dysmotility of my small bowel and it took me 7 gastro docs before finding one who knew anything and was able to diagnose me correctly.
I am at my end here as far as urogyne's go or findind a doc who is willing to help me better. This urogyne supposedly knows about IC, she even does the latest instills using lydocaine,steroids,heperain,and biocrab. But she does not have a great bed side manner. She lets here nurses do all the calling when there is a problem, which I believe is wrong. I have been to 2 urogyne's and 1 urologist so far in the last year since all this started. They are all about the same. None of them are willing to presrcribe pain meds though it seems. I was given ultram by the first urogyne, but it made my heart race so I cant take it.
I really dont think my family doc will help me either as far as pain goes. She will say that I need to see the urogyne for that pain. It is a no win situation really. I may ask for a referral to a pain doctor though. But I seriously doubt that this urogyne will refer me to one. No one should have to live in pain like this.
I go tomorrow for the instill and am scared to death that it will make me worse. I tend to have all kinds of weird reactions to things. Part of me wants to back out, yet part of me knows that I have no choice as I am in pain and need to get help. The nurse I talked to claimed that this instill should not make me feel worse at all. She said they help most people and it is really the only thing that works well with controlling pain. I am suppose to do 6 treatments( 1 a week). But she said the doctor said I may have to do twice a week. But I wont be able to afford that.
I am scared ladies about tomorrow. What if it makes my pain worse, and this doctor wont give me anything for the pain, that I am sure of. I feel so backed up against a wall. I know I need to do something to try and help this pain, but I feel that I dont know if what I am doing is right. I mean is it safe to do those instills really? I mean it just does not seem natural, but I am in so much pain that I have to do something.
I am also worried since I know I am not emptying my bladder 100% each time I pee. What I get that instill and after I pee, dont get it all out? Would it be safe for some of it to stay in there? Geez, I pray I wil even be able to pee afterwards.
Jen
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