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Help? Have I made myself sick or is it IC?
Okay...I have either made myself sick or it's my IC flaring or both. I haven't gotten much sleep for two weeks and I've also been flaring for several days. I felt like I was burning up last night but refused to check my fever (didn't want to believe I had one when I wasn't "truly sick" as in the flu or something). Well I just checked it and I do have a fever. I've had a lot of pelvic pain yesterday and today in particular and lower back pain as well. Can IC cause a fever? I truly think it's that plus the exhaustion. Also, are any of you able to get a sort of general "excuse" from your Uro saying you may have to miss work due to the IC even if you don't actually go to the doctor? We all know that going to the doctor every time we flare doesn't really help. But my school district requires excuses and if you don't have them and use a bunch of sick days, you get reprimanded. Anyway, this is the first time I've felt like I had a fever with mine. I was wondering if any of your Uros do "checkup" cystoscopies after the first one or two that they use for diagnosis? I think I may need another one because I feel like mine has actually gotten worse. I also have Hunner's ulcers which doesn't help. Ugh...just feel like crying...I hate these days.
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Diagnosed with endo Feb 2005
Diagnosed with IC Dec 2005
Currently taking:
60 mg Cymbalta
Seasonique birth control -
Hi Wingirl,
Sorry, but I think you need to go to the doctor or ER, sounds like you may have an infection...
About the teaching & sick days... Do you have a teachers' union? I don't think you should have to provide doctors note unless you miss more than 3-5 days at a time... I'd check with your union (and you may want to even call your union office directly if your school rep isn't helpful) before providing the school or district with anything that could be used against you. My principal initially was very supportive about my IC, but when I wanted a promotion used it against me. (And yes, that's illegal, but if you are staying at the job, you have very tough choices to make & filing a grievance was not in my best interest).
Sending a hug & wishing you better days soon.
PM me if you need anything. I've been a teacher for 16 years, 3-1/2 with IC.Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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We don't have unions in our state that I know of...which is probably part of the reason why we are last or next to last in everything regarding education. (I'm from SC) My principal is pretty supportive but he said that at the district office they may realize how many days I'm missing and send me a letter of reprimand. The stress of teaching does not help, as you well know. As for an infection, it could be I suppose, but it feels more like IC (pain, but no burning). But I know infections don't always act "normally."Diagnosed with endo Feb 2005
Diagnosed with IC Dec 2005
Currently taking:
60 mg Cymbalta
Seasonique birth controlComment
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What does FMLA stand for? So basically you still get docked pay if you don't have any sick days, but you can't lose your job because of it?Diagnosed with endo Feb 2005
Diagnosed with IC Dec 2005
Currently taking:
60 mg Cymbalta
Seasonique birth controlComment
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Just wanted to send you some healing thoughts.Comment
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FMLA is Family Medical Leave Act, it's a federal law. Your doctor fills out the paperwork and they can't fire you and you don't have to provide a doctor's note at all after the FMLA has been approved. I used it when I had my son to go to my prenatal appts and my maternity leave. I'm going to apply for it at my job once I've been there a year, that's how long you have to be employed by a place before you can apply.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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You didn't mention how high your fever is. It's very possible you have an infection --- definitely if your temp goes as high as 102, you need attention.
Warm hugs,
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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It's sounds like you have a possible kidney infection or bladder infection. With the back pain and fever and all. I hope you went to the doctor. Please let us know you are okay!
Hugs,
MoonheartComment
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Congrats on your Award!Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
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Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.Comment
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Wow, that is very interesting about the FMLA. My hubby is a school teacher. I was wondering, does this FMLA only cover my hubby if he is the one who is sick?? Like for instance if we decided to travel somewhere out of state to get help for me, could he use this FMLA to secure his job even though he is not the one who is sick, I am. I am sure if he could even apply for the FMLA. He works for the Chicago Public School board. Does this FMLA apply to everyone or all teachers in any state?
JenComment
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Fmla
I think all companies have to provide FMLA
I know I don't need an excuse..Can take off some 1000 hours a year or so
unpaid of course
lucky..i havent called off since 10/11/2006!!!!!Quit ELMIRON due to hair loss
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