Hi Gals.
Oh, I am so mad I cant stop crying. I just talked to the nurse and she talked to my doctor about the reaction I had with the instill on Friday and how it swelled me up and I could not pee afterwards. Well, she said the doctor said that I did not have an abnormal reaction at all and that if I want to get better she strongly suggests I keep doing the instills otherwise there is nothing left for me to do.
I told the nurse that I disagree, and that not being able to pee was a definite reaction. I did tell her that I do feel better today and that the pain is less, but I do not want to go through what I went through with having to have that stuff cathed out as it caused me so much pain.
I also suggested that maybe we omit a couple of the drugs, like perhaps the marcaine and biocarb and see if juts the steroid and the heperain would help. Well She said " OH NO, you have to have the full cocktail in order for it to work." I told her that with the marcaine, well that is just a numbing agent, and that wears off after a few hours, and has no lasting effects long term and that I thought that the steroid would still help with the inflammation would it not? And she did not know what to say, and asked me if I was a pharmacist since I kept asking about the drugs and wanted to omit a couple of them and she said that the doctor is the one who knows what is best basically. But she said she would tell her what I said and see what she says.
I am so upset I cant stop crying. So basically she is saying that I have to do the instills or I am sh** out of luck. The nurse actually said that it was no big deal if I had to cath myself that it is so easy and that she has patients do it all the time. I told her that Yes, that may be, But I HAVE IC and it does hurt!!! ARRRRRRRGH I am so angry right now. She said maybe the doctor would get back to me, or she would try to later today. SHe had the nerve to tell me the doctor was pretty good about getting back to her pateints. I was thinking, Well that is funny, I have not had a chance ONCE to even talk to her. I always get stuck relaying my messages to the nurses.
I dont what to do gals. I feel I am at a loss. Do I go ahead and do these instills again after what I went through? I just dont know what to do. Please any advice right now would be appreciated.
Jen
Oh, I am so mad I cant stop crying. I just talked to the nurse and she talked to my doctor about the reaction I had with the instill on Friday and how it swelled me up and I could not pee afterwards. Well, she said the doctor said that I did not have an abnormal reaction at all and that if I want to get better she strongly suggests I keep doing the instills otherwise there is nothing left for me to do.
I told the nurse that I disagree, and that not being able to pee was a definite reaction. I did tell her that I do feel better today and that the pain is less, but I do not want to go through what I went through with having to have that stuff cathed out as it caused me so much pain.
I also suggested that maybe we omit a couple of the drugs, like perhaps the marcaine and biocarb and see if juts the steroid and the heperain would help. Well She said " OH NO, you have to have the full cocktail in order for it to work." I told her that with the marcaine, well that is just a numbing agent, and that wears off after a few hours, and has no lasting effects long term and that I thought that the steroid would still help with the inflammation would it not? And she did not know what to say, and asked me if I was a pharmacist since I kept asking about the drugs and wanted to omit a couple of them and she said that the doctor is the one who knows what is best basically. But she said she would tell her what I said and see what she says.
I am so upset I cant stop crying. So basically she is saying that I have to do the instills or I am sh** out of luck. The nurse actually said that it was no big deal if I had to cath myself that it is so easy and that she has patients do it all the time. I told her that Yes, that may be, But I HAVE IC and it does hurt!!! ARRRRRRRGH I am so angry right now. She said maybe the doctor would get back to me, or she would try to later today. SHe had the nerve to tell me the doctor was pretty good about getting back to her pateints. I was thinking, Well that is funny, I have not had a chance ONCE to even talk to her. I always get stuck relaying my messages to the nurses.
I dont what to do gals. I feel I am at a loss. Do I go ahead and do these instills again after what I went through? I just dont know what to do. Please any advice right now would be appreciated.
Jen
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