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No symptoms for 4 mos...in a flare...Elmiron patient

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  • No symptoms for 4 mos...in a flare...Elmiron patient

    Hello. I was diagnosed perhaps 2 years ago. I have been on Elmiron for about a year with diet modificiations and I have been one of the lucky ones with only occasional flares. Flares that used to last a month lasted only a few days.

    I was TOTALLY symptom free for 4 mos. I have been flaring on and off for a week and now am in a flare.

    OF course, I was pushing the limits. A coffee here and there. Diet cola. You name it.

    QUESTION - has anyone got insights as to whether this flare will last? Do I need to go back to the simple IC diet? Will that offer relief?

    Is that normal?

  • #2
    Hi there.
    Well, I would probably stick with the IC diet indefinitely. They say that IC never goes away, just that it can get better with meds, and diet.
    For me, I cant relate to the flare thing. I dont have flares because I am always in pain all the time since getting this. I dont have to many periods of relief. I do get like a day or so inbetween where I maybe feel less pain, but for the most part I dont get relief.
    I wonder if everyone gets just flares or are the people like me who are alwaya in pain with this no matter what.
    Anyways, I would go back to the diet and stay with it, especially if it was helping you before.
    Jen

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    • #3
      I'd have to agree that it would be a good idea to get back on the diet. Then when you feel better, you can try some of the "bad" foods and drinks, one at a time in small amounts.

      Donna
      Stay safe


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      [3MG]

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      • #4
        When I began adding back in trigger foods I would go right back to the bland diet again if I flared. I had to take it very slow and not overdo the trigger foods in the beginning or I would flare.
        Kim

        Diagnosed August 2001

        Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


        Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

        I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

        *****************************

        “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

        “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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