Announcement

Collapse
No announcement yet.

flaring during period?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • flaring during period?

    I always though flareups are common prior to period? have been feeling awful for the last 2/3 weeks but this week during period, pain burning and frequency are so awful can't even sit for 10mins.

    could it be as not had a period for 3 months...


    my ic has been worse over the last year or so but have always been able to control flareups lately with my 'toolkit' so only ever have really bad frequency whilst meds are acting....


    cannot take tramadol anymore (interactions with elavil and also abnormal heart rhythms) , maybe that is why things are worse as pain is not helped by just codeine...have taken one 10mg of elavil in the day to help calm things down as elavil at evening gives me a few hours relief...

    it is meant to increase painkilling action of opoids too?


    any ideas what i can do??

    was having constipation and thought most of my flare was due to that, but sorted that out now but burning and frequency is through the roof with no respite...

    using bicarb, codeine, heat pad, ditropan....


    ironically, 3/4 weeks ago had a period of 4 days total relief - double capacity and no frequency- thought was on way up........


    does anyone else feel worse during period?
    IC diagnosis: Aug 2005
    Symptoms: Urgency, urge and irritation and urethral symptoms
    Flareup for 1 year til July 2007 (had constant urge and pain et al....)

    Elmiron 100mg 3x daily April 2006 - present
    Enablex 7.5mg nightly Sep 2007 -present
    Atarax, Elavil 10mg nightly (Dec 2007)
    Acupuncture - November 2007 - present

    (Past meds for IC- Cystistat, Elavil 30mg, Ditropan, long term a/bs, Prednisolone, Cimetidine, Neurontin)

  • #2
    Huni

    I am in exactly the same boat as you!!! In fact I could have written that myself!

    I have been having a period for two weeks which has been two weeks of HELL!

    I suffer with vulvodyina too so I am in so much bloody pain!!
    My bladder is crying out and the freqency, pain, urgency, burning is so bad!!!

    Well I have been doing the same as you and using bicarb, codeine, heat pad, ditropan....and I really cannot think of anything else!!

    I cant take tramadol either so I know how you feel!!

    Have you tried bathing is bicab and luke warm water???? The helps me soooo much and takes away the pain too!

    sorry I cant be much help
    xx
    Started with symptoms 2004 after a severe infection.
    Was diagnosed with IC Feb 2006 after cystoscopy.
    Diagnosed with vulvodyina and PN in july 2006.
    Dignosed with ME and IBS Oct 2006.
    Currently taking Amytriptaline 50mg, regular pain killers and birth control!
    Also doing IC diet and regular use of heat packs.
    Still struggling with IC and controling my symptoms so looking for some help

    also recently had abnormal pap, CIN III and just had LEEP done 2007

    Comment


    • #3
      I was have constipation problems with codeine as well. I Have really bad flares whne I am about to get my period and during my period. I'm just about ending my period but I am still in pain!!! the past few days have been complete torture. Last night I had such a bad headache, it made me naucious.
      Why doesn't Ultram work for headaches but it helps calm my bladder down? Pain is pain right? Weird.... I hop eyou get some relief soon!

      (((Hugs)))

      Rachel
      ***Rachel***

      Dance like no one is watching
      Love like you've never been hurt
      Live today like it's your last

      Dxd with IC in June '06

      Comment


      • #4
        hi kjd, I think I now have vulvodynia/ burning and sensitivty now too. this started happening a month or so ago so can't wear tight clothes/underwear and sanitary towels worsen it so ended up buying the all natural ones

        the thing that scares me is first just had frequency, then diet sensitivity, then constant urgency, then pain, then burning and now vulvodynia type symptoms too.... all these symptoms had about a few months time span in them...seems my ic is one that gets worse.... I was hoping maybe not and that would be lucky not to get vulvodynia or burning....

        hope you feel better soon! have tried the hot showers to help ease the pain - am thinking of going to the gp to either increase elavil or get adequate painkillers as nothing is touching the pain and frequency

        think it's the burning down there that is worse as makes me go even more times!

        rachel,
        I have noticed tramadol didn't help my headaches infact gave me migraines when tablet was wearing off....
        apparently tramadol works in a totally different way to other painkillers as spoke to gp about alternative to it..
        IC diagnosis: Aug 2005
        Symptoms: Urgency, urge and irritation and urethral symptoms
        Flareup for 1 year til July 2007 (had constant urge and pain et al....)

        Elmiron 100mg 3x daily April 2006 - present
        Enablex 7.5mg nightly Sep 2007 -present
        Atarax, Elavil 10mg nightly (Dec 2007)
        Acupuncture - November 2007 - present

        (Past meds for IC- Cystistat, Elavil 30mg, Ditropan, long term a/bs, Prednisolone, Cimetidine, Neurontin)

        Comment


        • #5
          i used to have horrible flares during my period but i've started using a menstrual cup. i was afraid of the size at first and thought it might be uncomfortable. plus the whole idea of it completly grossed me out. but it has been great. there is slight discomfort when i put it in but other than that i don't even feel it. and you don't have to take it out as often as a tampon.
          i hadn't even heard of them before a couple months ago and i wished i'd heard of them sooner.
          i think i had chemical sensitivity to tampons and pads and maybe thats why it helped so much?
          i don't know.
          the most helpful link i have for it is http://community.livejournal.com/men...ps/648061.html
          love.life.

          Comment


          • #6
            Oh my period makes me much worse. I think it does for alot of women. I dread when my period is due, which is in a couple weeks .
            Jen

            Comment


            • #7
              Hi Lynnemm7,
              Can I ask, what is a menstrual cup and where do you get it? How does it work? Sounds interesting. I also hate using pads as they really irritate me, and I dont like to use tampons either.
              Jen

              Comment


              • #8
                well it sounds really gross. but it's basically a silicone cup that you put in and empty whenever it's full. it varies from person to person. i can go like 6 hours on my first day without having to empty it. the last days i can go all day long. it's really nice to not have to worry about it.
                i have the mooncup UK. that link i put shows all of them and talks about the differences and all that....
                you just wash it whenever you empty it and you can boil it between periods to sanitize it.
                it's nice to not have to worry about buying pads or tampons at all too!
                the cost is a lot up front (like 30 dollars) but obviously if you never buy pads or tampons again it's worth it =]
                i used to take baths like 3 times a day when i was on my period because of the pain and wearing pads or tampons hurt and i coudln't go without...
                i've never had problems putting it in or taking it out, but if you read other entries in the lj community i linked to other people have. so i think it just varies from person to person.
                love.life.

                Comment


                • #9
                  oh and also i just googled mooncup UK and bought it from their website. the UK is important because there is a moon cup that is a different cup.
                  also some health food supermarket type stores carry some of them, i think diva cup is most common in the US. =]
                  love.life.

                  Comment

                  Working...
                  X