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  • Not a good day

    OMG today is just not a good for me. I'm so.....well u all know just in pain. I'm hurting so bad it is crazy. I was supposed to have an apointment yesterday with my gyno but she RS on me so no help there. My boyfriend asked me what was wrong and I said what is not?? He smiled and told me that he loves me but I never feel good anymore. He kissed my forehead and left. He had to go an run some errands.

    I know that he loves me and our family that we have together. I just wish I could feel better for myself and for my family. It really is a bummer u know.

    My oldest son, Brandon will be here today. He lives with his father and Marc is going to pick him up for me later. I can't wait to see him. But once again he is going to come and Mom is not feeling good.

    My poor lil girl....all she wants to do is play with me or outside and all I can really do is rest. Victoria is almost 3.

    Then my baby...Anthony...he is just a few days away from turning 7 months old. Doesn't help much that he is teething.

    I truly don't have a lot of patients I love my kids with all my heart but man when I don't feel good it is so hard to take care of them.

    I really think alot of this has to do with stress also right now. My dad's 15th anniversary of his death is on the 7th of this month and for some reason it is really bugging me for some odd reason.

    Well I guess this is enough about my pain. But thank all of u so much ahead of time this has been the best thing for me. I know that everyone can relate to me but IT HAS BEEN A BLESSING and I don't get many of those.
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community

  • #2
    I am sending you a hug and hope you are feeling better soon. It is really hard somedays when you are in pain, do your best and enjoy your kids. It sounds like you have an understanding guy too.

    As far as the anniversary thing, it is very real and I have events in my life that some years it just seems like it hits me harder than others. Hang in there...
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

    Comment


    • #3
      ((((((((((hugs)))))))))) I hope you start feeling better very soon.
      Sharon

      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

      Where I can be found most days.



      Link to the ICN Patient Handbook:
      http://www.ic-network.com/handbook/

      Link to the IC Diet:
      http://www.ic-network.com/diet/


      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        I'm with the rest - big hugs to you and it's got to get better, right?

        I too usually feel the anniversary of my dad's death as well, he died March of 89, and every year it's a bit of a pang and I wish he were here so he could see my great hubby (even though he too can drive me to insanity, lol! ) So, don't worry about that, it's a normal thing I think. Especially with a parent who's passed...

        I think we all have short fuses when we don't feel well, it's just the nature of the beast. Can't tell you how many times I have snapped at my mom and the next instant regretted it horribly. I just make sure I apologize, lol, and tell her why I snapped etc. But no, it's not easy to deal with much of anything when you feel horrible, and pain is the worst, it nags at you and wears you down physically, mentally and emotionally.

        Sounds like you have adorable kids too!!! Maybe you could brainstorm some activities (like rainy day activities) you can do when you don't feel well, you don't mention how old your oldest son is, but maybe he can come up with some ideas. Set your little girl up with some finger paints or something and ler her create some art for mommy, to cheer you up! I don't have kids yet, but I know that they love a "mission", lol, as in - "ok, now draw me a sunshine and sailboat!" And then, get in on the act, you can be sitting or laying on the couch with some crayons etc, but yet she'll be playing with mommy!!! Save the more rambuctious stuff for when you feel better!

        I do hope you feel better soon!!! Be kind to yourself as well!

        hugs,
        Tracey
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #5
          I'm sorry your not feeling well. This disease really kicks our butts sometimes. I'm sure your kids will just be happy enough to see you. They know how sick you are and I'm sure love just spending time with you. I will keep you in my prayers.

          (((Hugs)))

          Rachel
          ***Rachel***

          Dance like no one is watching
          Love like you've never been hurt
          Live today like it's your last

          Dxd with IC in June '06

          Comment


          • #6
            I will pray that you feel better quick! Hang in there you are a very strong woman!

            Erika
            IC diagnosed officially via cysto/urodynamics 1/26/07

            Grade II Endometriosis diagnosed via lap 12/11/07

            "Fall down seven times, Stand up eight."

            "Life is a tragedy for those who feel and a comedy for those who think."

            Current Treatments:
            Interstim Since 5/25/07!
            Birth Control

            Comment


            • #7
              Hope you do get better. I too feel my grandmother's anniversary (but its usually her birthday - wish my husband would of known her - as she was a wonderful person.
              Hang in there, it will get better. Go lay down, with your heating pad and take some pain medication and sleep for awhile if you can. (I know its hard with little ones).

              Comment


              • #8
                Thanks for all the support girls!!!

                My oldest son, sorry he is 10 now and when he is here he is a wonderful help. He wanted to go live with his dad so I thought about long and hard and gave in. I know some might think I'm a bad mom for that...but Brandon is very strong willed and I had been having some problems with him. Also that is his dad and who could take better care of him then me....his dad. So I do miss him so much but I think and pray it was a good choice.

                I feel like his dad will straighten him out!~!!! and also he is starting to grow up and needs his dad more right now then his mom.

                but thanks ladies I needed it!!!
                Live your life to YOUR best, and Love to YOUR best!!!



                DX in 03 with Shingles
                Removal of Left ovary due to Cyst in 2005,
                I have had cyst since I started my period as a child age 12
                Hysterecotmy December 06
                IC DX March 07 by PST
                2 "rescue" instills in March 07
                Cyco May 07 confirmed IC
                Uro study June 07
                1st Pain Block July 17,08
                Hydro/Cysto Nov 11, 2008
                12-11-08 was told I had alot of inflamation

                Meds: Allergic to 6 things
                Premarin......taking the gen cause I get it at Walmart for 4$$
                Presique for my drepression :woohoo:
                Abilify for my depression
                Adderall ...found out I'm ADD...makes sense now
                Kolopin for anxiety
                Noroco for my pain
                Valtrex for my shingles as needed

                Sorry if my spelling is off on the meds [/FONT]


                http://community.webshots.com/user/s...host=community

                Comment


                • #9
                  You are most welcome! And I don't see you as a bad mom at all! If he wanted to live there, you might as well let him have the chance since it's sounds like a great hands-on dad. If you hadn't, he might have rebelled or something. At least he's gotten to try!
                  Hugs,
                  Tracey
                  How do you eat an elephant? One bite at a time...

                  Harry arrived 2/23/09!



                  *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  IC Diet Cheat Sheet:
                  http://www.ic-network.com/diet/2009icdietlist.pdf



                  Dx's:
                  IC dx'd Nov 2004
                  Lymphocytic Colitis dx'd July 2005
                  Possible IBS
                  Current IC Meds
                  Vistaril 25mg in the evening
                  Previous IC Meds taken:
                  Cystoprotek - 2 caps 2x's a day
                  Elmiron, 100mg 3x's a day
                  Ditropan, 5 mg 3x's a day
                  Others:
                  Wellbutrin 150mg 2x's a day for Anxiety/IBS
                  Pepcid 40mg a day for GERD
                  Zytrec for Nasal Allergies
                  Align Probiotic daily for IBS

                  Comment


                  • #10
                    Stac,
                    I don't know if you have the money to spend on some art supplies for the kids but one of my co-workers told me about the coolest crayola stuff. They have those markers that look clear but only show up on the crayola paper. Now they also have finger paint that looks clear and only turns colors when you put it on the crayola paper. Griffin is going to be 3 in Augest and he loves it. That is one of those mommy doesn't feel well kind of treats and I don't have to worry about it getting anywhere because it won't show up anywhere else.
                    Being a mom is so hard when you feel so crappy all of the time. I feel so bad sometimes. Griffin had to keep on waking me up on the couch this morning when he wanted to watch something on tv because I kept on falling asleep. Hubby was here but of course he wanted mommy to do it.
                    I hope you feel better soon.
                    Christine



                    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                    I have tried every oral medication as well as rescue instills and DMSO.

                    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                    Also proud mom to the best Bullmastiff on earth, Claus

                    Comment


                    • #11
                      Hope you feel better soon, and there is no such thing as a bad mom on these boards.

                      Comment

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