Hey Gals.
Well, I am suppose to go in tomorrow for my third instill. I have had 2 so far. I am to have 1 once a week for six weeks. Well, as you all know, I am very sensitive to the meds they use in the instill (heperain,marcaine,kenalog,biocarb). I can never pee the stuff out afterwards and have to self cath it out (actually my hubby did it as I am so nervous to). Well, the first instill I did, I had alot worse pain for the first 2 days afterwards and then a couple days of some pain relief. This second time I had the instill last Friday, I was sooo much worse, I acually thought I got an infection from it and called my urogyne on Sunday and asked her for some antibiotics. I was in pain until Tuesday. Then On Wednesday and Today, my pain has been some better.
I am not sure where to go with these instills. I mean they help some, but I seem to be way worse for three to four days afterwards and then get a couple days of relief. Also the fact that I cannot pee the stuff out after and have to cath it out is no fun and also a risk of infection on top of it all. Also, I worry that maybe I am hurting myself by doing these instills since I cant pee the stuff out, is it my body having a bad reaction? I am usually able to pee better after I cath that stuff out. But I have not read of any of you who have had this reaction where you cannot pee the meds out. Is this odd or an allergic reaction?
My urogyne just tells me to keep doing them and that the pain should get better with time. Well, I am going on number three tomorrow and am still waiting to be pain free. According to the nurses there, they say that after doing 6 treatments, I should be way better and not to them anymore. I thought that sounded odd as there is no cure for IC. The doctor did say that some women do need to continue them though.
My biggest concern is the fact the it makes me not able to pee the stuff out, which makes me feel like my body is rejecting it or having a reaction even though my urogyne says it is no big deal that I can just cath it out. But I am wondering if these meds could permanantly damage me if I keep doing them. I do get a couple days of relief from them, except for this last time, I was in alot of pain for three to four days after. I am not sure if I had an infection or not, but it sure felt like it and it was the weekend so I could not and would not wait to get a culture. I did not want to take that chance if it was in infection. The urugyne said she doubted it was an infection since I took a macrobid an hour before the instill, but gave me the antibiotics just in case. Now I thinking it was either an infection or if not, then it is the meds in the instill that are causing the pain.
Part of me says to just maybe try it again tomorrow and see what happens and if I get more relief. But then I just know. ANyhow, I am really confused as if you cant tell
Thanks for listening. Hope you all are doing well.
Jen
Well, I am suppose to go in tomorrow for my third instill. I have had 2 so far. I am to have 1 once a week for six weeks. Well, as you all know, I am very sensitive to the meds they use in the instill (heperain,marcaine,kenalog,biocarb). I can never pee the stuff out afterwards and have to self cath it out (actually my hubby did it as I am so nervous to). Well, the first instill I did, I had alot worse pain for the first 2 days afterwards and then a couple days of some pain relief. This second time I had the instill last Friday, I was sooo much worse, I acually thought I got an infection from it and called my urogyne on Sunday and asked her for some antibiotics. I was in pain until Tuesday. Then On Wednesday and Today, my pain has been some better.
I am not sure where to go with these instills. I mean they help some, but I seem to be way worse for three to four days afterwards and then get a couple days of relief. Also the fact that I cannot pee the stuff out after and have to cath it out is no fun and also a risk of infection on top of it all. Also, I worry that maybe I am hurting myself by doing these instills since I cant pee the stuff out, is it my body having a bad reaction? I am usually able to pee better after I cath that stuff out. But I have not read of any of you who have had this reaction where you cannot pee the meds out. Is this odd or an allergic reaction?
My urogyne just tells me to keep doing them and that the pain should get better with time. Well, I am going on number three tomorrow and am still waiting to be pain free. According to the nurses there, they say that after doing 6 treatments, I should be way better and not to them anymore. I thought that sounded odd as there is no cure for IC. The doctor did say that some women do need to continue them though.
My biggest concern is the fact the it makes me not able to pee the stuff out, which makes me feel like my body is rejecting it or having a reaction even though my urogyne says it is no big deal that I can just cath it out. But I am wondering if these meds could permanantly damage me if I keep doing them. I do get a couple days of relief from them, except for this last time, I was in alot of pain for three to four days after. I am not sure if I had an infection or not, but it sure felt like it and it was the weekend so I could not and would not wait to get a culture. I did not want to take that chance if it was in infection. The urugyne said she doubted it was an infection since I took a macrobid an hour before the instill, but gave me the antibiotics just in case. Now I thinking it was either an infection or if not, then it is the meds in the instill that are causing the pain.
Part of me says to just maybe try it again tomorrow and see what happens and if I get more relief. But then I just know. ANyhow, I am really confused as if you cant tell

Thanks for listening. Hope you all are doing well.
Jen
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