Hi all-
Well, I need advice. I was doing SO well...the only thing I was on after a terrible bout with amitriptyline was my compounded T cream for a hormonal imbalance. I've been on that for 8 weeks, and it has helped my joint pain, vitality, and libido immensely.
Since 2 days after Easter, I've been flaring. The pelvic pain comes and goes (day on, 2 days off), but the urgency, nocturia, and frquency have been intense- I was down to 1 to 2x a night and then went back up to 5. I went to a new Uro, gave her the results of my Potassium Test last Sept (which were vague- not clear cut), but based on my history of bladder issues, voiding diaries, etc. she feels strongly it's mild to moderate IC. She gave me Neorontin (100mg) and hydroxyzine (25mg at night), and spirulina tablets 3x daily as first line therapy. If in 7 or weeks that's not working, she wants to do a Cytoscopy with Hydro under aenathesia...
Well, over the weekend, I was feeling, pretty good, but drowsy. But good. One night I even went only once! Today, though, I had a tiny bit of soy milk and have been paying the price a bit. If 10 is the worst, I am at a 4. I'm gonna take the hydroxyzine soon...
So ICers, can I expect good results from these meds? In the past I've done detrol, ami, tons of physical therapy, refused DMSO, had a cytoscopy with urethral dilation (HORRIBLE- but eventually had 3 symptom free months).
Overall, sometimes I suffer, but I feel when it's bad it's tolerable. I can work, do my life, etc. But today is bad. I've had days, weeks, where Indian food and burritos are fine.
I guess I'm overwhelmed. Since last August, this has been such an arduous process. I was doing so well in Feb/March! I can't figure out if intimacy or my Grandmother's homemade Polish soup made from vinegar and rye set me off at Easter. I know, I know...that was crazy. But she's 86, and I had to be respectful. I had been doing so well.
I am pretty IC diet conscious for the msot part. But when I feel good, in remission, I start to teeter. Food is so amazing- how can we not enjoy once in a while?
I'm just going on too long now. Someone, please tell me if I should have the cyto or just wait it out with the meds. I hate meds. But I wanna believe they're helping....myabe I'm falring b/c I'm going to have my period.
Oh...it's just a lot, you know?
Well, I need advice. I was doing SO well...the only thing I was on after a terrible bout with amitriptyline was my compounded T cream for a hormonal imbalance. I've been on that for 8 weeks, and it has helped my joint pain, vitality, and libido immensely.
Since 2 days after Easter, I've been flaring. The pelvic pain comes and goes (day on, 2 days off), but the urgency, nocturia, and frquency have been intense- I was down to 1 to 2x a night and then went back up to 5. I went to a new Uro, gave her the results of my Potassium Test last Sept (which were vague- not clear cut), but based on my history of bladder issues, voiding diaries, etc. she feels strongly it's mild to moderate IC. She gave me Neorontin (100mg) and hydroxyzine (25mg at night), and spirulina tablets 3x daily as first line therapy. If in 7 or weeks that's not working, she wants to do a Cytoscopy with Hydro under aenathesia...
Well, over the weekend, I was feeling, pretty good, but drowsy. But good. One night I even went only once! Today, though, I had a tiny bit of soy milk and have been paying the price a bit. If 10 is the worst, I am at a 4. I'm gonna take the hydroxyzine soon...
So ICers, can I expect good results from these meds? In the past I've done detrol, ami, tons of physical therapy, refused DMSO, had a cytoscopy with urethral dilation (HORRIBLE- but eventually had 3 symptom free months).
Overall, sometimes I suffer, but I feel when it's bad it's tolerable. I can work, do my life, etc. But today is bad. I've had days, weeks, where Indian food and burritos are fine.
I guess I'm overwhelmed. Since last August, this has been such an arduous process. I was doing so well in Feb/March! I can't figure out if intimacy or my Grandmother's homemade Polish soup made from vinegar and rye set me off at Easter. I know, I know...that was crazy. But she's 86, and I had to be respectful. I had been doing so well.
I am pretty IC diet conscious for the msot part. But when I feel good, in remission, I start to teeter. Food is so amazing- how can we not enjoy once in a while?
I'm just going on too long now. Someone, please tell me if I should have the cyto or just wait it out with the meds. I hate meds. But I wanna believe they're helping....myabe I'm falring b/c I'm going to have my period.
Oh...it's just a lot, you know?
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