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  • GriffsMommy
    replied
    I seem to feel like a lot of other people. I was pretty much in pain all the time, my uro started me on Elavil and I saw a BIG drop in my pain and was soooo happy but then I had sex and it's right back, ugh, heaven forbid we should have painfree sex. I hope you start to feel better soon

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  • Bethrlk
    replied
    Hi Lisa,

    I hope your flare ends soon......I have had flares that last well over 8 weeks....on the bright side, sometimes I am lucky enough to be symptom free for 3-4 months....IC SUCKS!!!

    As time goes on, I feel like my flares last longer than years ago....

    I hope you feel better soon!!

    Hugs,
    Beth

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  • LISA41
    replied
    so sorry to hear about you pain and it sounds sick but I too am glad to know I am not the only one out there . Please pursue this other Dr. for pain meds. My urologist will not give the pain meds so I go to My primary who gives me ultram and vicoden but the vicoden needs to last a long time . I take the ultram every 4 to 6 hours . Please , please keep in touc h with me and let me know hwo your dr visit goes . good luck , Lisa

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  • littlemyrn
    replied
    Me too. I have been getting worse over the last 3 months, to the point where I have considered going to the ER just to get some short term pain relieve in IV. There was an article in our local paper regarding are we relying too much on narcotics for chronic pain, well, a dr. wrote in regarding the training a pain dr. must go through, etc. It had his email address, his office is around an hour away. I emailed him with my IC story. He actually emailed me back and said he was not familiar with IC pain, but would try to find a pain dr. that was, well he didn't. But I got an email from him yesterday and said he would be willing to see me and for me to call his nurse to set up an appt. I am going to do that tomorrow. My son is having dental surgery today, so I really don't have time to wait for call backs, etc. I told him it would be worth my while just to have a face to face with him and see if he could give me some long acting pain meds, with breakthrough meds to help. I have to limit the lortab to 1 1/2 a day, because that is all my uro will write, and yesterday I was crying in so much pain that I had to have a friend take my son to ball practice because I had already taken my limit 1 1/2 pills, had been on heating pad with TENS and nothing. I am soooo tired of feeling this way. sorry I rambled, but it is good to know you are not alone.

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  • dancemomof2
    replied
    ((((HUGS))))) I very rarely have a pain free day, but I don't consider that a flare. My flares are when a "normal" IC day for me is intensified with burning, frequency, more pain, and just the general WHere the heck is the couch feeling. I Hope you feel better soon.

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  • LISA41
    replied
    flare

    you too . I wish I knew what made me worse and what made be better . To me a flare is when the pain is so bad even the pain meds do not work well . I have never had a day in 12 years when I can say the pain is gone . sorry you are unwell .

    Originally posted by jen74 View Post
    To be honest, I have pain all the time. When I first got IC which was last May, it would come and go , like what people call flares I am assuming. Well, when November of last year came, I got bad and stayed bad, and I feel I am getting worse as time goes on. I had like three days of relief this last week, but now the pain is returning again.
    Everyone is different I suppose. I hope you feel better soon.
    Jen

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  • jen74
    replied
    To be honest, I have pain all the time. When I first got IC which was last May, it would come and go , like what people call flares I am assuming. Well, when November of last year came, I got bad and stayed bad, and I feel I am getting worse as time goes on. I had like three days of relief this last week, but now the pain is returning again.
    Everyone is different I suppose. I hope you feel better soon.
    Jen

    Leave a comment:


  • LISA41
    started a topic flare for 2 weeks

    flare for 2 weeks

    I have been bad for over 2 weeks . I think it will never end . I just feel as I get older it gets worse and the flares are longer and longer . Does anyone else out there feel this way as well ?
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