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  • Help if u can

    Ok I'm not sure if this is part of IC or not.... I have had some itching in my female region....not a yeast infection. I'm very red, itching and boy does it burn. I'm not sure if it is part of the IC or something completely different. I have been in a "flare" for a few days.

    Just not real sure, if u have any ideas I would love to hear them. I know i should call my gyno but I truly hate having to go u know. Thanks ahead of time
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community

  • #2
    Sounds like it could be an infection: vaginal yeast, vaginal bacterial, or a UTI.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

    Comment


    • #3
      It does sound like an infection. But, it also could be a vulvodynia flare..
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        HI! I'd say,,,,,,run, don't walk to your gyno. You don't want that to turn into a bad infection when you could treat it now at this level. Good luck! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment


        • #5
          I agree. There are times when the only thing to do is to see your doctor and this is one of those times.

          Warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Well thank you ladies for your responses. Today it has clamed down, not itching anymore....so that is GREAT!!! LOL

            Still flared up and red. I did some research on that V word and it sounds like that's what it could be. I know it was not a yeast just cause I just went to the dr and no yeast. so but thanks again ladies. I gotta run got a sick baby today
            Live your life to YOUR best, and Love to YOUR best!!!



            DX in 03 with Shingles
            Removal of Left ovary due to Cyst in 2005,
            I have had cyst since I started my period as a child age 12
            Hysterecotmy December 06
            IC DX March 07 by PST
            2 "rescue" instills in March 07
            Cyco May 07 confirmed IC
            Uro study June 07
            1st Pain Block July 17,08
            Hydro/Cysto Nov 11, 2008
            12-11-08 was told I had alot of inflamation

            Meds: Allergic to 6 things
            Premarin......taking the gen cause I get it at Walmart for 4$$
            Presique for my drepression :woohoo:
            Abilify for my depression
            Adderall ...found out I'm ADD...makes sense now
            Kolopin for anxiety
            Noroco for my pain
            Valtrex for my shingles as needed

            Sorry if my spelling is off on the meds [/FONT]


            http://community.webshots.com/user/s...host=community

            Comment


            • #7
              I am glad you are feeling better! I had the same thing happen to me in November, and they found nothing, no yeast, no bacteria. I was not red but everything just felt "raw" and burning like you couldn't believe! He had me do warm "sitz" baths, and they actually seemed to help. I tried over the counter creams (vagisil and those medicated wipes but they seemed to make it worse). And it just kind of went away on its own... Then about a month ago- same thing! I immediately called the doctor in a panic-- nothing again! This time he said maybe you have "vulvadynia" but he didnt really know because once again it's one of those things that they just diagnose you with when there is no other reason for your symptoms. Well of course 2 days after the doctor I was back to normal again. I think that must be what it is and seems as though those with IC commonly have it. Another "flare" to worry about...

              Comment

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