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Need A Natural?

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  • Need A Natural?

    i have quit everything due to hair loss.
    quit elmiron 7 weeks ago
    quit elavil just a few days ago

    anyway i need to get something to use for frequency
    until i can get back to try new script

    which of the best for frequency?

    i am using desert harvest aloe now

    anyone have any idea about frequency &
    licorice root
    magnesium oxide
    Quit ELMIRON due to hair loss
    Cystoprotek ROCKS!

    find me on FACEBOOK -
    search my email [email protected]

    Current Meds:
    AM Cystoprotek & ATARAX 50mg
    PM Elavil 25mg

  • #2
    Hi! I'm more confused about meds than you are. Started Elmiron a month ago. Started Elavil this week. Tell me about the hair loss. Is it from all over your head - or one place? Did the meds help your IC?

    I would much prefer using natural meds. Wish insurance covered them.

    Very confused... and pretty new to the flares... been in pain for two months though... ready for relief but not loss of long hair...

    Glad I found this site this week...

    Thank you!


    • #3
      Hello and welcome Allison..
      I dont know about Elmiron, but Elival has been a life saver for me.. It along with Cymbalta has decreased my symptoms to the point I can have a alomost normal life.. I do have flares but only about one day a week before it was every day..I have heard that Elmiron can cause hair loss but it works differantly for some people.. Some people have reported great success with Elmiron..Hope you feel better soon..

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4

        i was on elavil first. didnt see any improvement
        then i added elmiron...much improved
        hair loss began about 3 months later

        started at the part line..but eventually..thinned all over
        i mean i have hair all over...but it thinned everywhere

        i quit the elmiron...7 weeks ago
        and was still doing just fine with the elavil
        and i added aloe place on the elmiron

        but when i hit week 7..of being of the elmiron...and my hair was still falling out..i did some reaseach..and found that elavil can also cause it

        so i quit that 2 days ago.
        and my frequency has picked back up

        i do plan to return to the elavil...maybe in a few weeks
        after the hair loss stops.

        i think all of it combined caused it.
        Quit ELMIRON due to hair loss
        Cystoprotek ROCKS!

        find me on FACEBOOK -
        search my email [email protected]

        Current Meds:
        AM Cystoprotek & ATARAX 50mg
        Dinner CYSTOPROTEK
        PM Elavil 25mg