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need immediate prevention strategy

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  • need immediate prevention strategy


    So I'm really scared of getting a major flare tonight. I've been on these killer antibiotics for a week and a half and its slowly playing havoc with my bladder. I only have a half a week left, and i HAVE to finish them.. no options.

    Additionally, today I'm seeing my inlaws all day. Its my BIL birthday and my SIL is in an opera tonight so it will be an all day engagement... I've flared in front of them before and it always makes me upset because they dont know how to handle it... basically they handle it by ignoring it... so I feel neglected and upset.

    I'm especially worried about the opera. Last years opera sent me into a flare because of the REALLY long sitting in those opera seats.... Maybe I'm irrationally scared of this years opera but I'm really really dreading it. My husband also really wants me to go because we'll be moving soon, and we should spend time with his family before we go... i know he's right.

    So, do any of you gals know of any good flare prevention methods? I'm sitting with a heat pack now because my bladder is SORE, I just don't want it going into the heated painful spasms that my flares are like... any ideas? tell me PLEASE!!

  • #2

    glass of water...with baking soda tsp
    Quit ELMIRON due to hair loss
    Cystoprotek ROCKS!

    find me on FACEBOOK -
    search my email [email protected]

    Current Meds:
    AM Cystoprotek & ATARAX 50mg
    PM Elavil 25mg


    • #3
      If you have any peridium or something like periduim I would take one of those and believe it or not drink lots of water this keeps your systom flushed out..

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4
        Either of the above tips is a good one. What about a stick-on heating pad?
        If your husband is driving, maybe 1/2 a pain pill?
        Hope you feel better & have a good time,

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest

        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!