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so, I have been doing so good (5 months) since my diagnosis. Now that I have moved back home (Northern Indiana) from Atlanta, it seems like it is all coming back. Does anyone think it could be the pollution in the air that triggers my IC, if so I need to get out of here quickly....Im getting really scared b/c these feelings are coming back.
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Onset of symtoms November 1, 2006
Diagnosed December 8, 2006 with cysto/hydrodistention... Gradual relief with elmiron around month two, keep feeling better and better. and then remission
2008 Update...still in remission
Diagnosis: IC
Meds: Elmiron 300mg/day, hydroxyzine 25 mg 1x/day
Myspace: Add me! Im always looking make new IC friends. http://www.myspace.com/45171133 -
BAM,
I do not know about pollution, I am sure it does not help..But I do believe that IC and allergies have some sort of link..So maybe its something there that is causing you to have allergies..Just a thought..
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I was going to say exactly what Ronda did, that it could be allergies. There's some indication that a lot of IC sufferers feel worse during spring and fall allergy seasons, so that is a possibility.Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Peace, Carolyn
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Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
On the Beach with IC Comment
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I totally thought about the allergies too, but when I was in atlanta they were having record breaking pollen counts every day and nothing bothered me. So I just dont know what we could have here in IN that was not in GA. I guess its just like IC...a mystery.Onset of symtoms November 1, 2006
Diagnosed December 8, 2006 with cysto/hydrodistention... Gradual relief with elmiron around month two, keep feeling better and better. and then remission
2008 Update...still in remission
Diagnosis: IC
Meds: Elmiron 300mg/day, hydroxyzine 25 mg 1x/day
Myspace: Add me! Im always looking make new IC friends. http://www.myspace.com/45171133Comment
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