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  • The UTI is gone but the burning remains

    After 3 weeks the stubborn uti finally went away. Monday's culture came back negative but my symptoms have sayed just about the same. My baldder refuses to calm down and in a day or two my period will start which means I will probably be miserable all weekend and into early next week. I hate this disease. With the infection gone I will probably go back to doing some instills to help soothe my poor diseased bladder once my period is over. If not one thing it's another! I get sooooo tired this disease I could scream. I sure wish someone could come up with cure for IC so none us would have to live like this. I HATE IC! I HATE IT, I HATE IT, I HATE IT.
    TexasHoney

    Let's keep praying for a cure.
    IC Symptoms began in early 2001
    Divorced : Sept 2002 (Partly due to IC)
    Diagnosed with IC in April 2004
    Most recent injury - Rupurtured Left Achilles Tendon
    Wed Jan 28 2009
    (Ice Storm Accident)
    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
    Other Injuries
    Broken Left Ankle - July 2004 ( fell off ladder)
    Broken Left Ankle (Again) - May 2005 (car accident)
    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

    CURRENT MEDS
    Elmiron, Pyridium

  • #2
    I feel for you hon. I had a bad infection three months ago, and it took weeks for me to feel better again. I hope you get to feeling better again soon.
    Jen

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    • #3
      I'm right there with you! Hope you feel better soon.
      mom_in_ma

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      • #4


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

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        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          (((hugs))) and a for good measure.
          Sharon

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.



          Link to the ICN Patient Handbook:
          http://www.ic-network.com/handbook/

          Link to the IC Diet:
          http://www.ic-network.com/diet/


          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            Oh, it is rotten. We know.

            According to my doctor, there is no reason not to do instills while you have your period.
            Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
            Wishing you happiness and good health, and all the best out of life.

            Peace, Carolyn
            ___________________________________________________

            Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


            On the Beach with IC

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            • #7
              I feel for you. Burning is one of the worst things with IC. If you don't have High Blood Pressure, I have found that drinking 1/2 teaspoon of Baking Soda in a little water followed by a large glass of water really gives great relief from the burning. You can do this 2 or 3 times a day. Hope this helps and hope you have pain free days soon.

              Comment


              • #8
                Interesting about the baking soda...... i actually JUST finished a round of antibiotics and i am on another round bc of the UTI that will not go away.

                Comment


                • #9
                  Hope you feel better soon!!!!!
                  besides all the things to help soothe your bladder and lesson acidity I would include some muscle relaxing things since UTI's can really trigger some muscle tightness in your pelvic muscles which may be why the burning remains!

                  http://icandme.9.forumer.com/index.php?showtopic=6 pelvic floor dysfunction (PFD) learning to relax the muscles treatment options symptoms of PFD and more
                  Faith, Hope, and Love,
                  Katrina


                  I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                  IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  or find me on facebook http://www.facebook.com/kat671?ref=profile
                  Be the Miracle! & Pay it Forward!

                  [email protected] please contact me...I am here to help!

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                  • #10
                    I am sooooooo miserable

                    Thanks for all the advice and support. I really don't know what I would do without y'all. I tried some baking soda but I didin't do really do anything for me. I fell asleep on the couch watching TV around 9:30pm and I slept pretty good until about an hour ago. It's now 4am here in Texas and and can't sleep. I have peed 3 times in the last hour with little urine coming out. The last time it felt I was peeing razor blades. I am also burning in between trips to the potty. Right now my bladder feels like it is full of fire ants. To top it off my period has started so I don't expect very much improvement over the next few days. This is awful. I am about to run out of pain meds and wouldn't you know it it's the weekend. I'm sorry if rambling I really need to get back to sleep if my stupid bladder would let me. Thanks for reading.
                    TexasHoney

                    Let's keep praying for a cure.
                    IC Symptoms began in early 2001
                    Divorced : Sept 2002 (Partly due to IC)
                    Diagnosed with IC in April 2004
                    Most recent injury - Rupurtured Left Achilles Tendon
                    Wed Jan 28 2009
                    (Ice Storm Accident)
                    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
                    Other Injuries
                    Broken Left Ankle - July 2004 ( fell off ladder)
                    Broken Left Ankle (Again) - May 2005 (car accident)
                    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

                    CURRENT MEDS
                    Elmiron, Pyridium

                    Comment


                    • #11
                      Girl, I feel your pain. I just got over a nasty uti myself. My last culture was also negative but my bladder hasn't seemed to get the message. I hope you start feeling better soon.
                      Natalie

                      I am multi-diseased with : MS, IC, IBS, and PDF

                      Diagnosed with IC - May 2006 IC symptoms : burning and frequency

                      Diagnosed with MS - March 2004 MS symptoms numbness in arms and legs, muscle weakness, major lack of bladder control and increasing bowel control problems. I wear Depend underwear 24/7.

                      Diagnosed with IBS - Sept 23, 2008

                      Diagnosed with PFD - Oct 1, 2008

                      Divorced Oct. 2009

                      IC Meds

                      Elmiron
                      Hydroxyzine
                      Elavil
                      Lortab for pain
                      Uristat

                      MS Meds:

                      Betaseron
                      Novantrone
                      Corticosteroids
                      Skelaxin ( muscle relaxer)
                      Neurototin for pain


                      "For God so loved the world, that he gave his only begotten son, that whosoever believeth in him shall not perish, but have everlasting life." -John 3:16

                      The Serenity Prayer:
                      God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.

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                      • #12
                        No Relief In Sight (at least until my period is over)

                        I need to vent.

                        I feel so hopeless tonight. I feel bad all over "Down There". I am peeing every 15-20 minutes. The burning is excruciating every time I go. My period pain is about twice as bad normal. Midol is not cutting it. I don't know if I am going to able to make it to Mom's house tomorrow for Mother's Day. My bladder always seems to act up at the most inconvienent times. Maybe it's my hunner's coming back. I don't know:help. I need your prayers and support.
                        Thanks in advance.
                        TexasHoney

                        Let's keep praying for a cure.
                        IC Symptoms began in early 2001
                        Divorced : Sept 2002 (Partly due to IC)
                        Diagnosed with IC in April 2004
                        Most recent injury - Rupurtured Left Achilles Tendon
                        Wed Jan 28 2009
                        (Ice Storm Accident)
                        2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
                        Other Injuries
                        Broken Left Ankle - July 2004 ( fell off ladder)
                        Broken Left Ankle (Again) - May 2005 (car accident)
                        Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

                        CURRENT MEDS
                        Elmiron, Pyridium

                        Comment


                        • #13
                          Update: I feel a little better today.

                          My period is starting to wind down. The burning has lessend quite a bit but my frequency has is still way up ( every 20-30 minutes). I worked from home today and that helped. I have to go in to the office for a very important meeting in the morning and tomorrow afternoon I have a meeting with a new client. So I am hoping I will be able to get the frequency down by in the morning. Lately I seem to have frequency even when I when my pain and burning are at bay. This disease is a constant battle that I get soooooo tired of fighting. I sure wish there was a magic potion I could take to get this horrible disease out of my body. I want to be cured.
                          Last edited by TexasHoney; 05-14-2007, 12:36 PM. Reason: spelling
                          TexasHoney

                          Let's keep praying for a cure.
                          IC Symptoms began in early 2001
                          Divorced : Sept 2002 (Partly due to IC)
                          Diagnosed with IC in April 2004
                          Most recent injury - Rupurtured Left Achilles Tendon
                          Wed Jan 28 2009
                          (Ice Storm Accident)
                          2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
                          Other Injuries
                          Broken Left Ankle - July 2004 ( fell off ladder)
                          Broken Left Ankle (Again) - May 2005 (car accident)
                          Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

                          CURRENT MEDS
                          Elmiron, Pyridium

                          Comment


                          • #14
                            Ugh Texas, I totally feel your pain. My period threw me into one of the worst flares that I have ever had last week. I missed work Monday and Tuesday of last week and still didn't feel completely better when I went to work on Wednesday. I hope that you are able to do okay with your meetings tomorrow and your frequency goes down
                            Christine



                            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                            I have tried every oral medication as well as rescue instills and DMSO.

                            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                            Also proud mom to the best Bullmastiff on earth, Claus

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                            • #15
                              Uggghhh, I am on my period now and my bladder is in a bad flare!! My stomach is also in a huge flare and I am in pain and feel so bloated in my upper tummy. It sure does suck to have two awful diseases to deal with at once. I cant think of worse pain than bladder or tummy pain, and I am stuck with both. Thanks for hearing me vent.
                              Jen

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