The UTI is gone but the burning remains

[TexasHoney ICN Member Find all posts View Profile Close TexasHoney]

After 3 weeks the stubborn uti finally went away. Monday's culture came back negative but my symptoms have sayed just about the same. My baldder refuses to calm down and in a day or two my period will start which means I will probably be miserable all weekend and into early next week. I hate this disease. With the infection gone I will probably go back to doing some instills to help soothe my poor diseased bladder once my period is over. If not one thing it's another! I get sooooo tired this disease I could scream. I sure wish someone could come up with cure for IC so none us would have to live like this. I HATE IC! I HATE IT, I HATE IT, I HATE IT.

[jen74 ICN Member Find all posts View Profile Close jen74]

I feel for you hon. I had a bad infection three months ago, and it took weeks for me to feel better again. I hope you get to feeling better again soon.
Jen

[mom_in_ma ICN Member Find all posts View Profile Close mom_in_ma]

I'm right there with you! Hope you feel better soon.

[ICNDonna ICN Staff Find all posts View Profile Close ICNDonna]

Donna

[SharonA ICN Member Find all posts View Profile Close SharonA]

(((hugs))) and a for good measure.

[Berkshire Road ICN Member Find all posts View Profile Close Berkshire Road]

Oh, it is rotten. We know.

According to my doctor, there is no reason not to do instills while you have your period.

[Charlot ICN Member Find all posts View Profile Close Charlot]

I feel for you. Burning is one of the worst things with IC. If you don't have High Blood Pressure, I have found that drinking 1/2 teaspoon of Baking Soda in a little water followed by a large glass of water really gives great relief from the burning. You can do this 2 or 3 times a day. Hope this helps and hope you have pain free days soon.

[ithurtzz IC Friend Find all posts View Profile Close ithurtzz]

Interesting about the baking soda...... i actually JUST finished a round of antibiotics and i am on another round bc of the UTI that will not go away.

[Katrina ICN Member Find all posts View Profile Close Katrina]

Hope you feel better soon!!!!!
besides all the things to help soothe your bladder and lesson acidity I would include some muscle relaxing things since UTI's can really trigger some muscle tightness in your pelvic muscles which may be why the burning remains!

http://icandme.9.forumer.com/index.php?showtopic=6 pelvic floor dysfunction (PFD) learning to relax the muscles treatment options symptoms of PFD and more

[TexasHoney ICN Member Find all posts View Profile Close TexasHoney]

I am sooooooo miserable

Thanks for all the advice and support. I really don't know what I would do without y'all. I tried some baking soda but I didin't do really do anything for me. I fell asleep on the couch watching TV around 9:30pm and I slept pretty good until about an hour ago. It's now 4am here in Texas and and can't sleep. I have peed 3 times in the last hour with little urine coming out. The last time it felt I was peeing razor blades. I am also burning in between trips to the potty. Right now my bladder feels like it is full of fire ants. To top it off my period has started so I don't expect very much improvement over the next few days. This is awful. I am about to run out of pain meds and wouldn't you know it it's the weekend. I'm sorry if rambling I really need to get back to sleep if my stupid bladder would let me. Thanks for reading.

[Natalie41 ICN Member Find all posts View Profile Close Natalie41]

Girl, I feel your pain. I just got over a nasty uti myself. My last culture was also negative but my bladder hasn't seemed to get the message. I hope you start feeling better soon.

[TexasHoney ICN Member Find all posts View Profile Close TexasHoney]

No Relief In Sight (at least until my period is over)

I need to vent.

I feel so hopeless tonight. I feel bad all over "Down There". I am peeing every 15-20 minutes. The burning is excruciating every time I go. My period pain is about twice as bad normal. Midol is not cutting it. I don't know if I am going to able to make it to Mom's house tomorrow for Mother's Day. My bladder always seems to act up at the most inconvienent times. Maybe it's my hunner's coming back. I don't know:help. I need your prayers and support.
Thanks in advance.

[TexasHoney ICN Member Find all posts View Profile Close TexasHoney]

Update: I feel a little better today.

My period is starting to wind down. The burning has lessend quite a bit but my frequency has is still way up ( every 20-30 minutes). I worked from home today and that helped. I have to go in to the office for a very important meeting in the morning and tomorrow afternoon I have a meeting with a new client. So I am hoping I will be able to get the frequency down by in the morning. Lately I seem to have frequency even when I when my pain and burning are at bay. This disease is a constant battle that I get soooooo tired of fighting. I sure wish there was a magic potion I could take to get this horrible disease out of my body. I want to be cured.

[GriffsMommy ICN Member Find all posts View Profile Close GriffsMommy]

Ugh Texas, I totally feel your pain. My period threw me into one of the worst flares that I have ever had last week. I missed work Monday and Tuesday of last week and still didn't feel completely better when I went to work on Wednesday. I hope that you are able to do okay with your meetings tomorrow and your frequency goes down

[jen74 ICN Member Find all posts View Profile Close jen74]

Uggghhh, I am on my period now and my bladder is in a bad flare!! My stomach is also in a huge flare and I am in pain and feel so bloated in my upper tummy. It sure does suck to have two awful diseases to deal with at once. I cant think of worse pain than bladder or tummy pain, and I am stuck with both. Thanks for hearing me vent.
Jen