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I sat on a bumble bee and within 20 minutes I have been in an unbelievable flare. I have a lump the size of a golf ball on my bottom and it is throbbing. ughhh I hate bee's
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Ouch Leslie! That has got to suck! So sorry. This is why I hate bugs, all bugs are evil, lol
I hope you feel better soon
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Owchie! I HATE bee stings. Last summer we were outside eating and I slipped my foot out of my sandal and when I stepped back in, a bee had taken up occupancy and my foot was like a balloon! If you aren't feeling "strange" you might try some simple old remedies. When I got stung, I took some benadryl, then made a sort of gritty paste of meat tenderizer with drops of water, then put some on a piece of gauze and put it over the sting --- it did really help.
I also do not like bees!!!!!Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I took the Visteril and did the meat tenderizer paste and ice packs. Boy those things pack a punch behind them. It feels like a pitch fork went threw my leg instead of a bumble bee. My neighbor said to use vinegar but ewww the smell.Comment
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((((((((leslie)))))))) so sorry that you got stung.'The will of God will never take you where the Grace of God will not protect you.'
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Me too, I am so sorry you got stung. Hope you start feeling better soon.
Sending hugs, TrishannComment
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hey Leslie if it makes you feel bettert, my butt will hurt tomorrow.
you know I love ya.'The will of God will never take you where the Grace of God will not protect you.'Comment
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Ouch.... Im sorry...I hate bee stings..Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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Vinegar really does work wonders.... you'll forget about the smell because the pain relief is so awesome!current meds:
cytotec 200mcg twice daily
toprol
allegra
ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible
dx: hashimoto's thyroiditis 1998
dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
dx: endometriosis 2003
dx: innapropriate sinus tacchicardia 2005
meds tried but failed:
elavil (6months)- severe tachycardia
elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
a bunch of others
Me and my best friend's baby (also my Godson!)Comment
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Good news: you lived, the bee died! (And it deserved its death penalty!)
I've not had a bee sting (knock on wood), but a few years ago I got attacked by a batch of yellow jackets that had built a nest right outside the entrance to the laundry room where I used to live. Somehow the yellow jackets thought I'd gotten too close to the nest & I got stung a bunch of times. They stung my calves, my arm, then got in my hair, stung my scalp a bunch of times. My neighbor took a towel & crushed them on my head, because every time I put a hand up there to try to get rid of them, they stung me more. I spent the next 2 days popping Benadryls & icing everywhere. Nasty little beasts.
Wish they'd missed the ark...Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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LOL missed the ark, how funny and so true! Still flaring from the silly thing oh and I have a hole in my leg that looks like the black hole. I think I got stung my the mother of all bumble bees.' What happen to that cute little song "I wish I were a baby bumble bee?Comment
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Wow, I think being upset my have initiated the flare. When a person is upset, any pain your already having can get worse.
Hope you feel better soon.Comment
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picture
Ok Here is the lump that little booger gave me
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OMGosh Leslie...Are you allergic to bee stings? That's what your picture looks like to me. It could also account for the flare. (((hugs)))Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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