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Got careless

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  • Got careless

    My IC was doing okay. I was just dealing with horrible non-stop symptoms from my PFD. Suddenly today, I get urethral/bladder pain - the kind when it feels like your urethra is being tied in a bow. Thought back and I've been eating chocolate, pop, caffeine, alcohol etc. etc. ...I think the combo of everything flared me big time. Just hope it doesn't take as long as last time - 8 months - to get things settled down. Sheesh...thanks for listening..

  • #2
    Ouch! That stinks. I am not overly diet sensitive so sometimes I do the same thing, have way to many bad foods and I pay for it. Yesterday they were selling chili at work and I haven't had chili since I was diagnoised. It smelled sooo good. I went ahead and bought a bowl but my bladder wasn't very happy about it. I hope this flare doesn't last too long for you.

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      Sometimes drinking some extra water and either taking some baking soda in water or (what I do) take some Tums will help undo a diet-caused flare. I think we all do it once in a while. I hope your flare doesn't last long.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        so sorry you are flairing, we all have oopsed a time or 2..
        fell better quick.
        'The will of God will never take you where the Grace of God will not protect you.'


        • #5
          Well I'm sending you WARM thoughts.....maybe that will help. lol When I start to flare a heating pad seems to help some. So I thought I would send the warm thoughts. lol I know I'm a nerd. I hope it brings a smile to your face during your flare.
          Live your life to YOUR best, and Love to YOUR best!!!

          DX in 03 with Shingles
          Removal of Left ovary due to Cyst in 2005,
          I have had cyst since I started my period as a child age 12
          Hysterecotmy December 06
          IC DX March 07 by PST
          2 "rescue" instills in March 07
          Cyco May 07 confirmed IC
          Uro study June 07
          1st Pain Block July 17,08
          Hydro/Cysto Nov 11, 2008
          12-11-08 was told I had alot of inflamation

          Meds: Allergic to 6 things
          Premarin......taking the gen cause I get it at Walmart for 4$$
          Presique for my drepression :woohoo:
          Abilify for my depression
          Adderall ...found out I'm ADD...makes sense now
          Kolopin for anxiety
          Noroco for my pain
          Valtrex for my shingles as needed

          Sorry if my spelling is off on the meds [/FONT]


          • #6
            YIKES! I agree with the water and tums, they seem to help me some when I do a no no food.