No announcement yet.

Working with pain

  • Filter
  • Time
  • Show
Clear All
new posts

  • Working with pain

    I've had IC basically my whole life but it has gotten worse througout the past year. I started a new job this summer and already have had to be sent home because of a flare. I do have perydium but am advised not to take it all the time and i always take precautions especially when i am working. But i still have pain. I love my job but it is outside and i think i would be more comfortable working inside although i would not make the same amount of money. But of course not everyone understands what IC is or how it feels so i am scared of losing my job...
    Any suggestions would be appreciated!

  • #2
    First of all I would ask your uro for a different bladder pain med that you can take more often. I was worried about taking prydium all the time. I told my uro I was taking it alot and that I had read here that the ones that make you pee blue like Urelle are safer to take long term and more often. He agreed and gave me an rx for Urelle and that seems to help me.

    I would also suggest that you see what else your uro can give you to help your symptoms more and try being honest with your boss. My boss has been very understanding. I just provided documentation from my dr's office that I had to be able to make frequent restroom visits and be aloud to make them as often as possible.

    If I can think of anything else, let me know. If you ever want to talk to another person working full time w/ IC feel free to PM me!

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      I work full time as well. I work in a small office and no one minds how often I pee! It has taken awhile to find a job that understands(and I am in the medical field)but my current job is a blessing! Let me know if I can help!

      (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

      [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
      :angel: IC Angel Volunteer Coordinator :angel:
      :) Contact me via PM or e-mail if you would like to help
      I have learned all about life in 3 words: It goes on! :D--Robert Frost
      PCOS 7/85
      RSD 7/94 :headbang:
      Endometriosis 9/98 :toilet:
      Antiphospholipid antibody syndrome 9/99
      Kidney stones--too many to count
      Factor V Leiden mutation 10/02
      IC 6/03 :evilsmile
      Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
      "Spirit is an invisible force made visible in all of life"--Maya Angelou
      "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]


      • #4
        Hi! Elavil works great for bladder pain. It's a prescription and I love the stuff! Do you take Elmiron? Ditropan etc??? There's lots of things out there to make you more comfortable with IC. Good luck! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


        • #5
          Yes i am taking elmiron i tried taking elavil but saw no symptom change so chose to get off it since it was an anti depressant i also take enablex(which i think helps greatly for those days when you have to pee all the time) Tetracyclineand trymadol as needed for pain. I definently want to try the Eurelle though thank you