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  • What gives?

    All of a sudden, I start getting flare like symptoms and now it's like REALLY bad.

    My right flank has always had a dull pain that didn't bother me much. Sometimes it would get sharp and then it would burn when I peed ect.

    Now: it burns liie FIRE when I pee, I feel like my bladder is always full (plus urgency), a little frequency (more at night), flank pain, and my urethra feels as it there is a Q-Tip in it (very chafed feeling), my urine goes from almost clear to orangie and has taken on a wee bit of a foul odor.

    I havn't had this kind of pain in a LOOOOONG time.

    Nothing has really changed. So I am stumped. I took a Tramadol and I'm stoned as hell but still in pain. I wroked for one round of voiding (was pain free) but now it's back to the pee of fire.

    Anyways, any body have any thoughts??? If it doesn't get better in a week or so I guess I am going to have to go to the urologist.


    -THE GABBY <--this is how I refer to myself when I don't feel well.

    Medical "Issues":
    IC
    GERD
    Tachycardia(resting rate is 125-130 )
    Medicastions:
    Tramadol-as needed (IC)-50mg
    Elmiron 200mg twice a day
    Levsin .125mg 1-2 pills 4 times a day

  • #2
    merryberry,
    sorry that you're flaring. I know the experience well...feeling good and then...WHAM a big ol' flare. it's scary but you will get through it. Have you thought of being tested for a uti? Have you eaten anything that could have flared you? Take care of yourself.
    mom_in_ma

    Comment


    • #3
      Originally posted by mom_in_ma
      merryberry,
      sorry that you're flaring. I know the experience well...feeling good and then...WHAM a big ol' flare. it's scary but you will get through it. Have you thought of being tested for a uti? Have you eaten anything that could have flared you? Take care of yourself.
      I havn't eaten anything new or different. But it still might have been something I ate. The only real new thing was I havn't been drinking a lot of liquid.

      Normaly when I am tested for a UTI there is tons of protien and biliruben but no sign of infection. The only times I tested poitive for a UTI was after my cyto and potassium test (I had 4 in a row). And that was almost 2 years ago. I am thinking of investing in those home test strips, that way I don't have to haul my behind to the uro or my primary every time this happens.

      Medical "Issues":
      IC
      GERD
      Tachycardia(resting rate is 125-130 )
      Medicastions:
      Tramadol-as needed (IC)-50mg
      Elmiron 200mg twice a day
      Levsin .125mg 1-2 pills 4 times a day

      Comment


      • #4
        I was like this yesterday. My whole body burning too. It was so scary. Then today, nothing. Worried because today seems like maybe it's coming back.
        This disease is a nightmare.
        The Topamax has been a dream, but not predictable enough yet.
        http://www.TheCraftyEwe.etsy.com

        Comment


        • #5
          My suggestion is to be checked to be certain you don't have an infection working.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Originally posted by ICNDonna
            My suggestion is to be checked to be certain you don't have an infection working.

            Donna
            Yeah, I am going today for a urine dip test thing.

            It's odd because it will burn ect at random. The only thing that makes a difference is if I eat and drink NOTHING. Which I know is bad so I try to drink plenty of water and eat things that are liquid or bland (soup, chicken, cherios). I have also been having tummy truoble (which makes me think maybe that's agravating my bladder). Hurts like a son of a gun about 15 minutes to an hour after I eat. Then I get sick (vomit and the other end). It's like a gnawing feeling right above my bellybutton and just below my ribs.

            Anyway, I'll let you know how the dip goes (probably nothing)

            I will, however, ask for pyridium (or its equivalent) because I have my SATs tomarrow and can't have it burn. Gosh I loath sitting for 6 hours. And the pottys at the shcool where I take it have that toilet paper that is individual 4x4 squares. So I'll bring my own travel TP. Hide it in my pants or something :-P

            thanks all
            ~gabbs

            Medical "Issues":
            IC
            GERD
            Tachycardia(resting rate is 125-130 )
            Medicastions:
            Tramadol-as needed (IC)-50mg
            Elmiron 200mg twice a day
            Levsin .125mg 1-2 pills 4 times a day

            Comment


            • #7
              Ahh...it may be stress. If you are worried about the SATs, that might be causing the flare. Stress is a huge trigger for me.
              mom_in_ma

              Comment


              • #8
                Just got back from my primary doctor.

                She diped my urine (nothing showed up) but is going to send it out for a culture anyways.

                She also poked around my kidney area and my stomach. Based on my "ouches" she is sending me for an ultrasound of my bladder an kidneys. Apparently I have pain where I shouldn't.

                Either way. She told me also to try and take one Ditropan XL before bedtime. And see if that works for the spasms (or what she assumes to be spasms).

                Medical "Issues":
                IC
                GERD
                Tachycardia(resting rate is 125-130 )
                Medicastions:
                Tramadol-as needed (IC)-50mg
                Elmiron 200mg twice a day
                Levsin .125mg 1-2 pills 4 times a day

                Comment

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