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Arrrrrrgh! I have been FLARING FOR 6 WEEKS

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  • Arrrrrrgh! I have been FLARING FOR 6 WEEKS

    It's time for a good old fashioned rant. So here I go.

    What started out as a uti induced flare has lingered for 6 weeks. 3 weeks after the infection cleared up.This is the worst flare I have had in about 2 years. I went again Tuseday to get checked out for a uti and the culture results came back negative. Last week I found that I had 2 new hunner's ulcer's. Mine seem to come back every 6-8 months. I am sooooooo depressed tonight. I am absolutely, completely 100% miserable. I am going bonkers : I have a feeling it's going to be a very loooong night.
    I can't seem to get comfortable. I hurts when I lie down. It hurts to sit. My bladder feels like it is full of hot acid. My frequency has been off the charts. I am peeing every 15-20 minutes. Every trip to the bathroom is agonizing. I am running out of toilet paper. The burning is excruciating. I am having the hunners's lasered off next Friday. I don't know if I can wait that long without completely losing my mind. I managed to work all 4 days of this holiday shortend week. A half-day Tuesday and a full day at the office Wed and Thurs. I worked home from today. (Friday). If I go more than 20 minutes without peeing I feel my bladder is literally going to explode. I am dealing with some major retention here because most of the time it's been dribble, dribble, dribble. I am sooooooo frustrated. I am soooooo very very very tired of the pain, burning, pressure and frequency that accompanies this awful disease. I sure hope having the hunner's removed will help put an end to this nightmare of a flare. I don't know how much more I can take. Everybody please pray for me.
    Last edited by TexasHoney; 06-02-2007, 08:55 AM.
    TexasHoney

    Let's keep praying for a cure.
    IC Symptoms began in early 2001
    Divorced : Sept 2002 (Partly due to IC)
    Diagnosed with IC in April 2004
    Most recent injury - Rupurtured Left Achilles Tendon
    Wed Jan 28 2009
    (Ice Storm Accident)
    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
    Other Injuries
    Broken Left Ankle - July 2004 ( fell off ladder)
    Broken Left Ankle (Again) - May 2005 (car accident)
    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

    CURRENT MEDS
    Elmiron, Pyridium

  • #2
    I's sending healing thoughts in your direction.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Prayers are on the way. Hang in there.

      Comment


      • #4
        Texas,
        I'm right there with you! I've been in the worst flare for over 8 weeks now. Been the longest and worst flare ever for me to. I'm so tired of being in pain, and I'm so tired of being tired. I feel like it's never going to end. It really wears on you mentally besides physically. I hope you feel better soon.

        Kari
        Kari

        I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

        Comment


        • #5
          Texas,

          I hope you start feeling better soon - I think most of us here have experienced flares that have lasted for A LONG period of time....we can relate and sympathize.

          Hugs,
          Beth
          IC diagnosis 1999
          Meds: Elmiron
          hydroxyzine hcl
          DMSO as needed
          valium as needed
          librax 3x day

          TENS therapy



          Thanks to all on the boards - YOU have helped more than I can say!



          A person's true wealth is the good he or she does in the world.

          Comment


          • #6
            I am sorry to hear that you are having such a rough time. I hope you start feeling better after you get those hunner's removed. I will keep you in my prayers.
            Natalie

            I am multi-diseased with : MS, IC, IBS, and PDF

            Diagnosed with IC - May 2006 IC symptoms : burning and frequency

            Diagnosed with MS - March 2004 MS symptoms numbness in arms and legs, muscle weakness, major lack of bladder control and increasing bowel control problems. I wear Depend underwear 24/7.

            Diagnosed with IBS - Sept 23, 2008

            Diagnosed with PFD - Oct 1, 2008

            Divorced Oct. 2009

            IC Meds

            Elmiron
            Hydroxyzine
            Elavil
            Lortab for pain
            Uristat

            MS Meds:

            Betaseron
            Novantrone
            Corticosteroids
            Skelaxin ( muscle relaxer)
            Neurototin for pain


            "For God so loved the world, that he gave his only begotten son, that whosoever believeth in him shall not perish, but have everlasting life." -John 3:16

            The Serenity Prayer:
            God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.

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