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  • I am Flaring Big Time

    Pain, burning and frequency. I am sooooooo frustrated. This flare hit me in the middle of the night around 4am. I woke up with a a throbbing sensation in my bladder. I have spent the majority of the morning on the potty. Lots of pressure very little urine coming out accept for my sudden MS induced accidents. I have to wear depends all the time and I have had to make 4 or 5 changes since I woke up. It may be a uti. I probably shoud go to the uro tomorrow to find out. I also have a major leaking problem caused by the MS and it's sort of a mixed type of incontinence. Some days I dribble constantly. Some days I have pressure and retention. Other days it's a little bit of both.
    Often times I can't tell If my it's MS or IC or copmbination of the two. Today it seems like it's both. I feel bad all over. I had to miss church this this morning and I really wanted to go. I have been missing a lot lately. I hate how these 2 diseases are interfering with my life. Living with MS bad enough IC just makes things even more complicated. My niece is getting married next Saturday and I really want to attend but I don't know if I am going to be able to. It's not fair I am only 42 and I feel like an invalid. Being sick and having to wear diapers is very frustrating. My body is failing me. I feel like my value as a wife and mother has been deminished greatly. I am sad, depressed and angry. Please everyone pray for me.
    Natalie

    I am multi-diseased with : MS, IC, IBS, and PDF

    Diagnosed with IC - May 2006 IC symptoms : burning and frequency

    Diagnosed with MS - March 2004 MS symptoms numbness in arms and legs, muscle weakness, major lack of bladder control and increasing bowel control problems. I wear Depend underwear 24/7.

    Diagnosed with IBS - Sept 23, 2008

    Diagnosed with PFD - Oct 1, 2008

    Divorced Oct. 2009

    IC Meds

    Elmiron
    Hydroxyzine
    Elavil
    Lortab for pain
    Uristat

    MS Meds:

    Betaseron
    Novantrone
    Corticosteroids
    Skelaxin ( muscle relaxer)
    Neurototin for pain


    "For God so loved the world, that he gave his only begotten son, that whosoever believeth in him shall not perish, but have everlasting life." -John 3:16

    The Serenity Prayer:
    God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.

  • #2
    yes it sucks

    yes this disease sucks.
    but it could be worse
    Quit ELMIRON due to hair loss
    Cystoprotek ROCKS!

    find me on FACEBOOK -
    search my email [email protected]

    Current Meds:
    AM Cystoprotek & ATARAX 50mg
    Dinner CYSTOPROTEK
    PM Elavil 25mg

    Comment


    • #3
      I wish you luck honey. Try a heating pad and just relaxing. Hopefully you feel better in time.



      Diagnosed with IC 3-30-2003

      Flare ups 1 time a month lasts for days.

      Comment


      • #4
        Do you have a UTI home test kit on hand? You might try checking for infection --- and if the test strip says "yes" --- I suggest you put in a call for your physician today. If your own doctor isn't on call, there should be someone on call for him over the weekend. An infection can progress a lot in a day so if that's the problem, you probably should pursue it today.

        Warm healing thoughts,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          I sure hope you feel better soon ((((((((((hugs)))))))
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            Try to feel better. I'll pray for you. Maybe you can try 3-4 tums with water and an ice pack to take the edge off. I know how you feel, my body i failing on me too. My hormones are out of whack from overwhelming stress caused by my husband (major problems with alcohol and just generally, overall disrespectful ) . This has lead to my painful bladder and my hair is thinning and I just turned 25 So I understand the pain you feel!
            God bless and all the best

            Comment


            • #7
              I agree with Donna, I would pursue the infection thing today. I also know how that mixed incontinence with the MS is unbelievably frustrating. Some of my patients have used Baclofen for the spasms--have you tried it? I used it myself for a while for my own spasms and it worked well. I hope you feel better soon.

              Hugs,
              Barb
              (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

              [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
              :angel: IC Angel Volunteer Coordinator :angel:
              :) Contact me via PM or e-mail if you would like to help
              I have learned all about life in 3 words: It goes on! :D--Robert Frost
              PCOS 7/85
              RSD 7/94 :headbang:
              Endometriosis 9/98 :toilet:
              Antiphospholipid antibody syndrome 9/99
              Kidney stones--too many to count
              Factor V Leiden mutation 10/02
              IC 6/03 :evilsmile
              Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
              "Spirit is an invisible force made visible in all of life"--Maya Angelou
              "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

              Comment


              • #8
                I also agree with being checked for an infection. Hope you feel better soon

                Comment


                • #9
                  Just what I thought

                  It's a uti. I went to my uro today and the test showed positive. This is my2nd uti this year I had in late April. It took 2 weeks to get rid of. Ihope this one clears up a liitle quicker. At least an infection can be treated with the antibiotics. I still feel pretty lousy but my frequency has gone down a little.
                  I just want to say thanks to you ladies for your support and advice. This is a very friendly message board. I have really learned a lot about IC since joining here. For all of you are flaring I hope you all start feeling better real soon.
                  Natalie

                  I am multi-diseased with : MS, IC, IBS, and PDF

                  Diagnosed with IC - May 2006 IC symptoms : burning and frequency

                  Diagnosed with MS - March 2004 MS symptoms numbness in arms and legs, muscle weakness, major lack of bladder control and increasing bowel control problems. I wear Depend underwear 24/7.

                  Diagnosed with IBS - Sept 23, 2008

                  Diagnosed with PFD - Oct 1, 2008

                  Divorced Oct. 2009

                  IC Meds

                  Elmiron
                  Hydroxyzine
                  Elavil
                  Lortab for pain
                  Uristat

                  MS Meds:

                  Betaseron
                  Novantrone
                  Corticosteroids
                  Skelaxin ( muscle relaxer)
                  Neurototin for pain


                  "For God so loved the world, that he gave his only begotten son, that whosoever believeth in him shall not perish, but have everlasting life." -John 3:16

                  The Serenity Prayer:
                  God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.

                  Comment


                  • #10
                    I'm so glad your pain is from infection --- only an IC patient would be happy about a UTI diagnosis!

                    Huuuugs,
                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Hi sorry to hear your in pain, Im having a flare up with IC the last week has been rough Im having dmso on tues ,cant image having ms as well hope you get feeling better soon,my Daughter works with Ms patients but doesnt really understand the pain Im in she had a fit when she found out Im on sab-opium for spasums helps some but I find heating pad helps some, hope you getting feeling better soon

                      Comment

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