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I have a pap on wed....and i am afraid
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Quit ELMIRON due to hair loss
Cystoprotek ROCKS!
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Current Meds:
AM Cystoprotek & ATARAX 50mg
Dinner CYSTOPROTEK
PM Elavil 25mg
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Ummmm, are you having your annual pelvic?? A pelvic can cause a flare for me because they tend to push around in there and end up pushing right on my bladder most of the time, ouchie!! Since I usually have my pap with a pelvic I'm not sure what a pap all on it's own would do. I would remind them about your IC and ask them to be gentle. Hope it doesn't cause a flare for you.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I was lucky enough to have an OB/Gyn who specialized in IC (she has since moved away). But she said that the pelvic exam was more comfortable if they inserted that speculum in sideways instead of vertically. The handle part will then be touching the back of your leg instead of hanging down. If you tell your doctor he/she will know what I'm trying to describe. My doctor said it puts pressure on a different spot. Before I had this doctor, pelvic exams and pap smears always made me flare for at least a few days. Hopefully your doctor will know how to be gentle and maybe you can try having the speculum put in sideways. Goodluck.Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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I hope it goes fast and you are flare free!
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Before my hysto, pelvic's would hurt and would cause my vv to flare, but not so much ic. Good luck.Comment
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my gyn treats several IC patients, and is friends with my uro. he always told me to take something before my appointment, and have a driver, I still flare but its a bit easier while there.'The will of God will never take you where the Grace of God will not protect you.'
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