What to do?

[StephanieS]

I haven't posted for awhile but I just wanted to touch base with the community that understands. I had to quit my job!! I was doing child protection and couldn't take the stress anymore. I am doing private homecare now so I can be close to a washroom. How pathetic!! I am in a huge flare and am in Canada so I have no pain meds. I want to go to emerg because my right side is killing me and my vagina feels like its on fire. Emerg just tells me I have a UTI and gives antibiotics but we all know I don't have an infection. I worked all day and then had to coach my daughters baseball team tonight then come home and clean the house and do laundry, bath the kids and be supermom! I haven't slept in 2 days because the pain is travelling down my right leg. How can I keep going on? I just want to sleep and stay in bed but I have people depending on me. My URO sucks big time and no one in New Brunswick understands IC. I can't believe they even diagnosed me. I could probably get a toradol and gravol drip at emerg and that may get me to sleep for the night but I will wake up in the same mess tommorrow. My husband is in the army and thinks I'm alaways sick and should just suck it up. I am so frustrated right now. Why can't he understand the daily pain I live with? I am even out of my tramacet and have been eating tylenol 1's and advil but its not touching it. When I go to emerg they just make me feel like a junkie. We should have membership cards that explains our issues for us and it backs us up that we do suffer really bad. I haven't been back to my uro since DMSO treatments because I have just given up. My period is just ending so maybe the flare will subside. Maybe I should just down a bottle of booze and pass out. lol!! That would make it so much worse. How will I survive work tommorrow when the lady is depending on me to help her? I feel hopeless and helpless. How long are we expected to cope with this? Constant pain is so tiring. I know there are so many of you that are worse than me but I am just having a feel sorry for me day. I guess I am going to try the tub again and then my heating pad. I think the codeine in the tylenol 1's is wreaking havoc on my bowel because I also have IBS to add to my torture. I'm done now thanks for listening or reading. Maybe I should just buy some street drugs? I'm just joking!!

Hopeless in Canada.

Stephanie

[ICNDonna]

I think a trip to ER would be a good idea for you. And you might try stopping the Advil. Ibuprofen is a problem for many IC patients. I know I can't take it.

I wish I could give you a warm hug in person.

Donna

[StephanieS]

Thanks

Thanks Donna,

I feel a bit less depressed today. I am going to see my family Doc tommorrow and asking for a new uro. I think this time it may actually be a UTI now that I have a few more symptoms. Yesterday was a bad day today is a bit better and tommorrow will be great!! Thanks for the response. I don't know if I can give up my advil. Maybe thats why the pain never disappears?

[Romans8:28]

Sorry posted a longer answer that just wouldn't send!

I am sorry your hurting..., I do hope you check out if you have an UTI...,
and get a new URo who will listen!

I understand how hard it can be to take care of a family, and keep going when your hurting..., when you really need to rest! If you can take a break a warm bath with a little baking soda is very soothing! I don't know if they sell it in Canada but here I use AZO or Uristat and find it helps..,

I have also found a wonderful blessing in the vaginal suppositories, mine are 10% benadryl .5% lidocaine, and 1% lorazapan(sp) I order mine through Kevin at Dakota pharmacy but there are compounding pharmacies in Canada too! YOur family doctor could write the script, just to get your through..., others use valium etc. I find they help a lot with the bladder spasms. You do have to rest for about an hour while they are in or use them at night to help so you can rest!

I hope you are feeling much better soon!

Shelly

[Berkshire Road]

I wish I had something useful to offer you, but all I can say is, I'm so sorry you're having such a difficult time. Not having a doctor you can count on, and appropriate medication, is just so bad. I've been in that situation and it's awful. I really hope you can find a better uro. It sounds like maybe an anti-depressant might be a good idea, too. Some of them help with pain and with the inevitable depression that is brought on by the pain.

You know your pain is real. It's a shame your husband is not supportive. But you know that we, here, support you 100% and will be thinking of you. Please keep us posted!

[kadi]

Hi Stephanie,
Hang in there! I'm another one who can't tolerate Advil or Tylenol. (And of course that's what my doctor kept telling me to take in the beginning, along with antibiotics for the infection I didn't have.... Thank God for second opinions!)

If you're not on the diet yet, I really recommend it. It's one of the most effective things out there to help us. And none of my medicines are worth anything without following the diet as well. http://www.ic-network.com/handbook/diet.html

Hang in there, sending a hug,

[StephanieS]

Thanks

Thanks everyone for the support. I was just having one of those feel sorry for me days. I talked to my family doc and she won't prescribe anything as she doesn't know enough about IC but she is referring me to another uro. He is a younger guy that hopefully will be up on new meds and things. I also made an appointment to see a homeopathic doctor to see if they have any ideas. What the heck it can't hurt. I did make it through my week at work!!Hooray for me!! I really love this network as I as well as us all need the support. I just need the reassurance sometimes that it isn't all in my head.

Thanks everyone!!