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i'm so angry ughhhh... i have a appointment set for monday.. well, i started my freakin monthly to early. i guess i can't get tested for a uti.. the doc on call called me back.. i told him i was on my monthly etc. he told me i may need to hold back and to call this nurse name s... on monday and talk to her. anyway, before he let me go he said i'm sorry youre not pregnant and laughed that really ticked me off ughhh i can just slap him.. is there any way i can get tested for a uti while i'm on my monthly? i think i have a uti it's driving me crazy. i'm peeing little.. smells funny and i'm burning down there ughhhh. oh i feel like i'am also running a fever.
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Angela aka sleepyangel30 -
I am almost positive the time I got a UTI, they still had me pee in a cup even though it was my time of the month. It comes from two different places, so I would think it wouldn't matter. But I don't know I could be wrong.Onset of symtoms November 1, 2006
Diagnosed December 8, 2006 with cysto/hydrodistention... Gradual relief with elmiron around month two, keep feeling better and better. and then remission
2008 Update...still in remission
Diagnosis: IC
Meds: Elmiron 300mg/day, hydroxyzine 25 mg 1x/day
Myspace: Add me! Im always looking make new IC friends. http://www.myspace.com/45171133 -
My GP tested me many times for UTI's while I was on my period. They just do the dip stick test in their office though. They never showed anything but blood in my urine which I told them was probably because of my period. Because I had the symptoms of a UTI they would just give me the antibiotics, now I know they were just flares. I don't see why they couldn't culture you're urine while you have your period. Even though it will take longer to come back then at least you'll know for sure. Of course I'm not the nurse or dr though.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Sleepyangel I don't know why the doctor could not tell you if you can or can not, that is strange. You probably will have to wait and call that nurse Monday. I know it is so upsetting especially when you are hurting, if possible, maybe going to the ER or maybe call the ER and see what can be done. I know it stinks that you have to wait for a while just to get an appointment and then your monthly period comes around. I kinda have a feeling this will happen to me too. I miss three months and then here it is again.
Sleepyangel I am so sorry you are going through this pain. I hope you can get the help soon.
Take care, TrishannComment
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well, i went to the er they took a urine sample. i indeed have a uti ughhh and running a low grade temp. so the doc written me out anti's and something to relieve the symptoms.Angela aka sleepyangel30Comment
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sorry to hear you have a UTI but hopefully you'll start to feel better now.
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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i haven't had a uti in 2 yrs... now this one came back full forse i'm flaring like mad and the period aint helping either.. making me feel much worse.Angela aka sleepyangel30Comment
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Angela I am so glad you got some medicine to help you. Hope you feel better soon.
Take care, TrishannComment
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so sorry you had a rough start. There was no reason that they could not have done a test at the office regardlee of you having your period. ggrr that makes me mad. Sorry you had to go to the ER but glad yyou are getting trestment.'The will of God will never take you where the Grace of God will not protect you.'
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Hi Angela,
I hope you're feeling better soon!
Sending a prayer & hug your way,Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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Tampon
Shower...use a tampon...pee in the cup.
works for me..everytime
i have mine too...some days tampons cause me more frequency...not this month though...slept like a rock last night
go figure..Quit ELMIRON due to hair loss
Cystoprotek ROCKS!
find me on FACEBOOK -
search my email [email protected]
Current Meds:
AM Cystoprotek & ATARAX 50mg
Dinner CYSTOPROTEK
PM Elavil 25mg
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Only an IC patient would be glad it's "just" an infection. I hope you feel better very quickly.
Warm hugs,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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