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  • Job change

    I should of added this to my past thread. I changed jobs a few months ago from a job to where I was standing all day to one where I sit all day. I have noticed I do have to changes postions a lot to keep pressure off. I was thinking of buying that seat cushion they have on the site. Does anyone else have issues with sitting for long periods of time? Has anyone purchased the seat cushion? If so, has it helped. I am having more ureathral pain then I ever have before. Thanks, Rachann
    When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

    Diagnosed in 2001
    Meds
    Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed

  • #2
    I changed jobs about 6 months ago. With the new job I find that I'm sitting in one spot for longer periods of time than previously. When I find that the sitting is bothering my IC I make an effort to get up and move more. I'll use a coffee break to get out for even a 5 minute walk. Or instead of e-mailing or calling someone with a question I'll go see them just for a reason to get up and move.

    I've not tried the cushion, but it certainly wouldn't hurt to give it a try.

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    • #3
      I pretty much sit all day at work. I don't have problems with sitting cause urethral pain but my back hurts all the time lately. I have a heating pad plugged in under my desk and turn that on when I need it and that really helps.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

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      • #4
        I am home for now because I took a semester off from grad. School while I was trying to figure out what was wrong w/ me. I needed time to see doctors --IC dx May 3. I bought the cushion because I am supposed to be writing my thesis while home, but I have not found the cushion helpful enough. I too have problems sitting or standing. I have pain all the time, but find that sitting and standing exasperates the situation. So, for me, the cushion is a little helpful but not as helpful as I had hoped. Maybe for you it will help, though. --Kathy

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        • #5
          I have two of the cushions; one lives in my car. I especially like the one in the car if we go on long drives --- it definitely helps me.

          Donna
          Stay safe


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          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            I sit all day long at my job, and if I do have any problems sitting; I can get up any time I need to -- I don't need to take a break or whatever. I usually have to do something anyways! But if it gets really bad, I do have my heating pad with me so I plug it up and that helps a lot.

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            • #7
              Thanks for the advice

              I do use a heating pad already and it is beneficial. I went ahead and ordered the seat cushion. What do I have to lose? I'll keep you updated on if it helped me or not. Rachann
              When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

              Diagnosed in 2001
              Meds
              Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed

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              • #8
                Sitting is the worst for me. I also get the bad urethral pain from sitting too much. I really don't have the option to get out of my chair much at work so it's hard but the days I stand more I definitely feel better. I am going to check out the cushion.
                The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
                First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
                Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
                Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
                Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
                BABY GIRL 10/28/08 *** BABY BOY 7/8/11

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                • #9
                  Sitting is awful for me. Period. Especially in tight pans or jeans that aren't super low riders. I have found myself buying tons of dresses just so I don't have anything constricting around my middle. I would try the cushion.

                  Rachann I sent you an e-mail, write me back love!

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