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hi ladies: I think that maybe the ibuprofen I took for menstrual cramping is causing a flare--a miserable day today. Does anyone know what else to take? thanks, kathy
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Kathy,
A lot of us have problems taking ibuprofen. Sometimes it bothers my bladder, sometimes it doesn't. As long as I take prelief with it, it doesn't bother my bladder. The only other thing I can suggest that you take is tylenol. I don't that that bothers most people.
The one time it caused me a flare I had intense burning that started about an hour after I took it, I knew it was the ibuprofen because it was the only thing I had eaten/taken that would have caused that horrible burning! Hope you feel better soon.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Hi Kathy,
Christine had some great advice - try taking 2 prelief pills with the ibuprofen. Everybody responds differently to over the counter anti-inflammatories, so be careful. I once went into a 2 week flare from taking Aleve! YICK!!!
Take care and feel GOOD!
BETH
IC diagnosis 1999
Meds: Elmiron
hydroxyzine hcl
DMSO as needed
valium as needed
librax 3x day
TENS therapy
Thanks to all on the boards - YOU have helped more than I can say!
A person's true wealth is the good he or she does in the world.Comment
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I can't take ibuprofen.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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cramps
My favorite new thing are ThermaCare heatwraps. I bought like 9 boxes off eBay for $20. That's 27 wraps! They work soooo good. The box says they work for 8 hours. All of mine have lasted at least ten but really more like 12 hours! I normally use mine for bladder pain but they work great for menstrual cramps---which is what they were designed for. They feel really good.
Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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Thanks everyone! I will try all of this to see which works best. Hopefully today will be a better day. --KathyComment
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